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Thread: My friend is going to have surgery

  1. #1
    High_Heel_Lover
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    Default My friend is going to have surgery

    and I am so happy!

    He has Parkinsons and the surgery is more than $200 thousand and he's collected the money!! The story is is Spanish but I will try to give the gist...


    Cobra alas el sueño de Juan Carlos Ramos Mora

    Por Carmen Cila Rodríguez
    De La Perla del Sur

    Estuvo a punto de enganchar los guantes, pero ya cuenta con razones de sobra para celebrar esta Navidad.

    El joven artista gráfico Juan Carlos Ramos Mora no cesa de sonreír porque al fin esta semana partirá a Nueva York para someterse a la cirugía que frenará los bruscos e involuntarios movimientos corporales que le causa el Parkinson Juvenil.

    Su felicidad, empero, no termina allí.

    El dinero necesario para costear su intervención quirúrgica, que se había disparado hasta casi los $200 mil, prácticamente han sido asegurados, confirmó el artista de 29 de años de edad.

    “El Fondo de Enfermedades Catastróficas Estatal nos va a poner lo que nos falte. El plan médico (Triple-S) no cubrió, pero nos dio un donativo de $10 mil y Medtronic de Villalba ha donado el equipo para la operación, gracias a Dios”.

    “Me lo van a entregar las mismas personas que lo fabricaron en una emotiva ceremonia", añadió jubilioso ante tan buenas nuevas.

    Ramos Mora se someterá a un procedimiento denominado Estimulación Cerebral Profunda (DBS, por sus siglas en inglés), el cual se practicará en el Presbyterian Medical Center de Nueva York, el jueves, 20 de diciembre.

    Se espera que el joven retorne a su Ciudad el lunes, 21 de enero de 2008.
    Durante el mes de julio, Ramos Mora recurrió a La Perla del Sur para apelar a la ayuda y generosidad ciudadana. Entonces necesitaba cerca de $150 mil para asegurar un turno en la institución hospitalaria para el mes de septiembre.

    Sin embargo, su plan médico no costeó el proceso, por lo que acercarse a la cifra propuesta fue un proceso tedioso y agotador. Sin embargo, la unión de numerosas organizaciones y el cariño de un pueblo hizo posible que los fondos necesarios aparecieran.

    “Papá Dios no nos abandonó y ha seguido dándonos bendiciones y cosas buenas”, concluyó satisfecho el joven.


    El DBS

    Según el Instituto Nacional de Trastornos Neurológicos y Accidentes Cerebrovasculares, la estimulación cerebral profunda es un procedimiento quirúrgico utilizado para tratar variedad de síntomas neurológicos invalidantes del Parkinson, como el temblor, rigidez, agarrotamiento, movimiento lento y problemas para caminar.

    Actualmente, el procedimiento se usa solamente en pacientes cuyos síntomas no pueden ser controlados adecuadamente con medicamentos, como es el caso de Ramos Mora.

    La estimulación cerebral profunda usa un dispositivo médico llamado neuro-estimulador, el cual es implantado quirúrgicamente y que funciona con una batería, similar a un marcapasos cardiaco y aproximadamente del tamaño de un cronómetro.

    El dispositivo envía estímulos eléctricos a zonas específicas del cerebro que controlan el movimiento. Muchos pacientes experimentan una reducción considerable de los síntomas de Parkinson y son capaces de reducir mucho sus medicamentos luego de la intervención.


    Celebran misa

    Este viernes, 14 de diciembre -a pocos días de su anhelada operación- la familia Ramos Mora celebrará una misa de agradecimiento.

    La misma se efectuará a las 7:00 de la noche en la capilla del Colegio Ponceño.

  2. #2
    High_Heel_Lover
    Guest

    Default Re: My friend is going to have surgery

    This is what he will be having done. Please keep him in your prayers and thoughts, thank you.


    What is Deep Brain Stimulation for Parkinson's Disease?

    Deep brain stimulation (DBS) is a surgical procedure used to treat a variety of disabling neurological symptoms—most commonly the debilitating symptoms of Parkinson’s disease (PD), such as tremor, rigidity, stiffness, slowed movement, and walking problems. The procedure is also used to treat essential tremor, a common neurological movement disorder. At present, the procedure is used only for patients whose symptoms cannot be adequately controlled with medications.

    DBS uses a surgically implanted, battery-operated medical device called a neurostimulator—similar to a heart pacemaker and approximately the size of a stopwatch—to deliver electrical stimulation to targeted areas in the brain that control movement, blocking the abnormal nerve signals that cause tremor and PD symptoms.

    Before the procedure, a neurosurgeon uses magnetic resonance imaging (MRI) or computed tomography (CT) scanning to identify and locate the exact target within the brain where electrical nerve signals generate the PD symptoms. Some surgeons may use microelectrode recording—which involves a small wire that monitors the activity of nerve cells in the target area—to more specifically identify the precise brain target that will be stimulated. Generally, these targets are the thalamus, subthalamic nucleus, and globus pallidus.

    The DBS system consists of three components: the lead, the extension, and the neurostimulator. The lead (also called an electrode)—a thin, insulated wire—is inserted through a small opening in the skull and implanted in the brain. The tip of the electrode is positioned within the targeted brain area.

    The extension is an insulated wire that is passed under the skin of the head, neck, and shoulder, connectng the lead to the neurostimulator. The neurostimulator (the "battery pack") is the third component and is usually implanted under the skin near the collarbone. In some cases it may be implanted lower in the chest or under the skin over the abdomen.

    Once the system is in place, electrical impulses are sent from the neurostimulator up along the extension wire and the lead and into the brain. These impulses interfere with and block the electrical signals that cause PD symptoms.

  3. #3
    High_Heel_Lover
    Guest

    Default Re: My friend is going to have surgery

    When we were in high school, he would shake and people would make fun of him but no one knew why. HE is such a sweetie and I would get so mad and tell people off! I swear people can be so cruel But now that they know why and how people have come together to lend a hand and a few $$ the surgery is possible. I am so happy for him.

  4. #4
    High_Heel_Lover
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    Default Re: My friend is going to have surgery

    Here is his site

  5. #5
    AudreyLeigh
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    Default Re: My friend is going to have surgery

    I wish him the best of luck! I hope it works! Its amazing how far technology has come.

  6. #6
    Featured Member PuertoRicanPinup's Avatar
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    Default Re: My friend is going to have surgery

    He's in my thoughts and prayers, sweetie. My grandmother had Parkinson's and had surgery done. It really helped! *Sends positive vibes and love*
    "I will not be just a tourist in the world of images, just watching images passing by which I cannot live in, make love to, possess as permanent sources of joy and ecstasy. -Anais Nin"

  7. #7
    God/dess SundayMorning's Avatar
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    Default Re: My friend is going to have surgery

    How fantastic! I didn't know that a surgical procedure existed that could help with Parkinson's! Best thoughts and wishes to your friend...


  8. #8
    God/dess Bella21's Avatar
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    Default Re: My friend is going to have surgery

    Holy shit, that's a lot of money! Congrats!
    If you think school is hard, try being stupid.

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