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Thread: In SO much pain - I have Pancreatitis! Anyone else?

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    Sad In SO much pain - I have Pancreatitis! Anyone else?

    I haven't had much of an appetite in the last week or so; whenever I would eat anything I would get a burning sensation in my stomach. At first the burning was tolerable and I assumed it was a bit of heart burn or something - but the location of the burning was right in the middle of my stomach, directly under where my ribs end.

    The burning kept getting worse and worse - couldn't eat anything the poor BF made for me for Valentines day (Portabello mushroom lasagna) . I thought it might be a food allergy (I haven't been watching my gluten/dairy intake lately); but on Wednesday - after eating a bit of egg - I was sure I was going to die from stomach pain. BF insisted I go to the ER, where they drew blood, ultrasound etc. Everything was normal except something called my 'Amylese' level; it should be around 100, but mine was 725....really high, and it indicated Pancreatitis.

    The doctors offered to admit me to the hospital. I'd get a morphine drip for the pain and they'd IV me so I wouldn't have to eat for a few days while they waited to see if the Amylase went down and the pain subsided. I said no - I don't like hospitals....but now I'm kind regretting it. The percocet the doctor gave me is barely taking the edge off, and I didn't even eat much tonight. I'm thinking I'll just have to stop eating all together until the pain subsides. It hurts so freaking much. It feels like my stomach is on fire and nothing sooths it.

    I don't know WHY this happened. The doctor said it's usually becasue of drinking - but I'm not a drinker! I told him that but I got the feeling he doesn't believe me. Arg!!!

    Anyone else every have this? I'm feeling so frustrated with my body....

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Alcohol use is the most common cause in younger people, but it can also be caused by gallstones (and some other more obscure things). Have you or any of your immediate relatives ever had gall bladder problems?

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Nope - doctor said I'm clear of gallstones, and no one in my family (immediate or distant) has ever had them to their knowledge.

    Doctor was really pushing alcoholism. I don't drink a lot - up until December I didn't even drink at work; and now when I do it's a small amount, and not frequently.

    I'm doing some reading around online (trying to work through the pain) and I think it's due to my diet maybe? My body is super sensitive, and I've been eating poorly since Christmas - fatty foods and too much oil. I've been cleaning up my diet and I'm hoping I'll see results. Going to eat very small portions too.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by 4everresolutions View Post

    Doctor was really pushing alcoholism.
    To be quite honest, I can see why. Heavy alcohol use (not necessarily alcoholism) is by far the most common cause. Also, in your original post you stated that you are "not a drinker" and here you write that you do not "drink a lot". That sort inconsistency is a classic example of sort of prevarication you see in heavy drinkers who aren't being honest about it (I'm not saying that this necessarily applies to you, just that it looks that way). I would suggest you try not drinking at all for awhile. If you have another episode, then you know that alcohol use isn't the cause.


    Quote Originally Posted by 4everresolutions View Post
    I think it's due to my diet maybe? My body is super sensitive, and I've been eating poorly since Christmas - fatty foods and too much oil
    It's highly unlikely to have anything to do with fatty foods in and of themselves (but see below). If alcohol use and gall stones are out, I'd say the next most likely cause is medication. Are you taking any medications that you may have forgotten to mention to the ER doc? Perhaps something you started recently? As I mentioned, there are also some relatively rare metabolic disorders that can cause pancreatitis, but I suspect they ruled most of those out through blood tests.

    It is possible for very high blood lipids (cholesterol and triglycerides) to cause pancreatitis, but it has to have been going on for awhile, and it usually causes chronic pancreatitis rather than an acute attack like you seem to have had. However, it's possible that if you have some sort of genetic predisposition to high blood lipids and you've recently been eating a lot of fat, the spike in your lipids may have been enough to set off an acute episode. It's also possible that the ER didn't do blood lipids on you, if they weren't being thorough. So, when was the last time you had blood lipids run, and do problems with cholesterol run in your family?

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    ^I appreciate the differential diagnosis - but I was really either looking for moral support or a someone else who has gone through this; not for someone to play doctor. Thanks anyways.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Ouch! Sounds horrible hun! My mom had horrible gall bladder problems and it sounded much like you describe. She totally cleaned her diet. Doesnt eat any fat or as little as possible. ie. no butter, no fast food, etc. She just eats fresh fruit and veggies and lean meats with the occasional wholemeal grain and she said her stomach pains went away almost immediately. She too was in hospital. She only did one naughty thing that she couldnt give up which was 1 glass of red wine on sat. She had her gallbladder out this week so hopefully she wont have anymore problems in future. I know its not exactly the same as she didnt have pancretitis. But I thought that story might help. xx

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Ow, Im sorry you went through that! I have stomach problems, its the same spot below the ribcage. It makes me not get out of bed for a full day and my stomach swells up that it hurts to touch. I have been to doctors who did blood tests, ultra sounds, xrays to figure it out but cant.

    My doctor thinks its my diet, and I do agree with him, but hate it. I eat lots of salts, pepper, acidy, and spicy foods and it happens only when I eat a lot of these for long periods. I have slowed down my salt intake and spicy food a lot a year ago and did see improvements. Whenever I get a crave for spicy/salt foods, I go for them and this problem happens again. My cholesterol is also high, and my doctor said that can make the problem worse. I would take a look into your diet and play around with the food.

    What as helped me was, over the counter acid reducers and strong dark green tea it relaxed my stomach and helped with the burps. All I would eat/drink during those periods is smoothies, fruit, salad and soups cause my stomach would throw solid foods up. I hope you get better and the pain goes away naturally without it getting serious.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    that's rough.

    a few months ago, i was having some mad stomach pain. it got to the point where i'd find myself going to bed, only to have to throw up. and i seriously can't make myself throw up. i tried it when i was younger, and thankgoodness it didn't work or i'd've ended up bulimic. but it was really bad. and really scary. really, really scary. i'd be out during the day or at work, and have those stomach acid burps.

    so i had a good think and realized that i'd been eating only junk for a good couple months. like, barely even a serving of fruits or veggies, barely any lean protein. a ton of manufactured foods and greasy fast food. and nothing good. which is weird, because i love healthy foods.

    started eating healthier, and i started feeling a lot better really quickly.

    i'm still a bit worried that it might have been indicative of some sort of more serious digestive system problem, but for now at least i can sleep without having to throw up first. that's nice.
    -love everyone but keep them far from your soul-

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    You can have a high amylase level and it can just be the gallbladder too, though pancreas, liver, and gallbladder are all sort of interconnected.

    I would recommened you cut back heavily on fat for a week and see what happens. Sometimes with the gallbladder it's not even gall stones...it can just become sensitive to high amounts of fat and become somewhat spastic. They actually do a test in the hopital that hepatologists (liver specialists) call the "fried egg test." You literally eat a fried egg sandwich, they inject you with a compound (I think it's a radioactive isotope) and then watch to see what your gallbladder does.

    So that makes me think based on your egg comment, that it could easily be the issue. It all has to do with how well your body processes fats.

    If cutting back heavily on fats for a week doesn't help, try cutting out anything with wheat or gluten in it for the next week or 2. It wouldn't really affect the amylase levels, but you could have celiac disease and the amylase increase could be unrelated.

    See what your lipase levels were too ...even if they're right around normal, everyone's normal differs, and that level may be too much for your body to take.

    Make sure to see what your ALT's and AST's were, as they will give an indication of your liver's health. If they tested for BUN's and creatinine too, check that out. That's your kidney function, and while not really related to a fat issue or amylase, can still cause pain that radiates to other regions.

    Your best bet is to stick to ibuprofen ...it will help the pain and inflammation. Go easy on the tylenol, as that detoxes through the liver (ibuprofen is filtered through the kidneys). Take it easy on sugars for awhile, simply because your pancreas is already working hard to make up for the cells (and therefore function) lost from the inflammation. You don't want to overwork it producing insulin in this recovery period.

    Stay hydrated (64 oz of fluid a day) ...it's overstated, but such a key element to healing ...especially in the major organs. Whatever you do, stay away from alcohol for the next month. Pancreatitis can be a slippery slope if not brought under control.

    If you're a dancer, you aren't going to like hearing it, but your body needs rest. Dancing through the pain will only drag out the healing process.

    If the pain is still there after ruling out fat and then gluten, and waiting about a month, you're really going to need to see a specialist (GI or some hepatologists treat that). You'll need to be monitored for sugar levels and potentially diabetes if it's found you have chronic instead of acute pancreatitis. They'll also need to run other blood work to stay on top of everything, and hopefully they can find the cause of the problem.

    Even if it's acute pancreatitis and goes away, you really want to find out the cause, so you can try to avoid a recurrance. Viruses can sometimes cause that. Some medications can too. Try to think if you were feeling flu-like not long before that happened, or even if you ate anything different (high fats as mentioned above, or even sushi which can contain parasites or crustaceans, crab, shrimp, etc, which can carry Hepatitis A), if you switched from a name brand med to a generic version (they can be very different in total chemical makeup), etc.

    If you do coke, you also need to get a Hep C test. (They won't do that in an ER because it takes time for the viral load to come back and can be expensive.)

    Traditional coke use causes microscopic drops of blood to be shed onto whatever you're putting up your nose (most dancers just use dollars). If someone used the same dollar before you, even if you don't see it, their blood got on the dollar. If they had Hep C, which is a spore former, the disease will live virtually forever ...can't be killed with basic boiling or bleach ...so you will then get Hep C (hence why I used to lecture the girls to use a new straw each time ...you're at a club, they're readily available ...it's an easy preventative solution).

    I don't say the Hep C thing to scare you ...it's just something to consider. Also if the coke or whatever drug is cut w/something bizarre, that can wreak havoc on your organs ....you just never know. If it's cut w/something odd, unless you show signs of distress and poisoning in the ER, they will not draw bloods to look for poisonous substances. Just because you aren't fatally dying right after ingestion/inhilation, doesn't mean there wasn't something toxic in it that could cause long term organ damage.

    Remember too, that not all hospital's tests are created equal. The major cities w/med schools usually have state of the art MRI, UltraSound, and CT scan machines and will see a hell of a lot more on an image than will usually be detected via the same test at a smaller hospital in even a mid-sized town. You're problem could really just be gall stones, and they just may not have shown up on the test. If they only used ultrasound and the stone is stuck in a duct, it can sometimes be missed due to shadowing, and therefore you'd need a CT scan. MRI is really best and you don't get the added radiation of a CT scan. CT scans are just cheaper, which is why they will usually use that before ordering an MRI.

    Hopefully that will give you more insight and you'll be able to pinpoint the source of the prob. Good luck and best wishes for a speedy recovery

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    I really wasn't looking for medical advice - conventional wisdom says not to pay much mind to diagnosis granted on a public fourm - but I thought it was really nice of you to write up that long post, so I'm going to respond because you sound like your know your stuff. Are you a medical grad by any chance? I've always wanted to be a doctor, and I'm determined to get there one day.


    Quote Originally Posted by GradGirl View Post
    You can have a high amylase level and it can just be the gallbladder too, though pancreas, liver, and gallbladder are all sort of interconnected.

    I would recommened you cut back heavily on fat for a week and see what happens. Sometimes with the gallbladder it's not even gall stones...it can just become sensitive to high amounts of fat and become somewhat spastic. They actually do a test in the hopital that hepatologists (liver specialists) call the "fried egg test." You literally eat a fried egg sandwich, they inject you with a compound (I think it's a radioactive isotope) and then watch to see what your gallbladder does.

    Interesting, I've never heard of that. I will admit that my diet right before the episodes of pain was LOUSEY! I told the doctors that I had basically been on a 4-day Fast-Food binge (had McD's 3 times in 4 days!) but they seemed to shrug it off - I would need to be eating high fat for a LONG time before it had this effect.


    So that makes me think based on your egg comment, that it could easily be the issue. It all has to do with how well your body processes fats.

    If cutting back heavily on fats for a week doesn't help, try cutting out anything with wheat or gluten in it for the next week or 2. It wouldn't really affect the amylase levels, but you could have celiac disease and the amylase increase could be unrelated.

    I'm Glucose intolerant, but I don't have celiacs. I've been cutting out fat, dairy and gluten since I've posted this thread - no effect on the pain.

    See what your lipase levels were too ...even if they're right around normal, everyone's normal differs, and that level may be too much for your body to take.

    I'm in Canada, so I can't request what the doctors test (or so they told me - I should really look that up now that I have a chance...) . I asked for Lipase, and ALT and pretty well everything you've mentioned, as I found an article online listing out blood tests I should check when you have abdominal pain.

    Make sure to see what your ALT's and AST's were, as they will give an indication of your liver's health. If they tested for BUN's and creatinine too, check that out. That's your kidney function, and while not really related to a fat issue or amylase, can still cause pain that radiates to other regions.

    Your best bet is to stick to ibuprofen ...it will help the pain and inflammation. Go easy on the tylenol, as that detoxes through the liver (ibuprofen is filtered through the kidneys). Take it easy on sugars for awhile, simply because your pancreas is already working hard to make up for the cells (and therefore function) lost from the inflammation. You don't want to overwork it producing insulin in this recovery period.

    Ibuprofen wouldn't get be through the day - I'm taking morphine and even that's not fully doing the job. I'm in - like - a LOT of pain. Although I have to admit that today isn't bad so far.

    Stay hydrated (64 oz of fluid a day) ...it's overstated, but such a key element to healing ...especially in the major organs. Whatever you do, stay away from alcohol for the next month. Pancreatitis can be a slippery slope if not brought under control.

    If you're a dancer, you aren't going to like hearing it, but your body needs rest. Dancing through the pain will only drag out the healing process.

    I drink a lot of water, and I'm taking time off work. No way I could work like this.

    If the pain is still there after ruling out fat and then gluten, and waiting about a month, you're really going to need to see a specialist (GI or some hepatologists treat that). You'll need to be monitored for sugar levels and potentially diabetes if it's found you have chronic instead of acute pancreatitis. They'll also need to run other blood work to stay on top of everything, and hopefully they can find the cause of the problem.

    I have an appointment with a specialist in April. Yay socialized medicine! Super long wait times for appointments. I think the doctors are crazy for expecting me to live like this for a month, but what can I do? I'm just a patient....

    Even if it's acute pancreatitis and goes away, you really want to find out the cause, so you can try to avoid a recurrance. Viruses can sometimes cause that. Some medications can too. Try to think if you were feeling flu-like not long before that happened, or even if you ate anything different (high fats as mentioned above, or even sushi which can contain parasites or crustaceans, crab, shrimp, etc, which can carry Hepatitis A), if you switched from a name brand med to a generic version (they can be very different in total chemical makeup), etc.

    I had - and still have - an earache that's lasted since October/November. Again - told the doctors, but they blew it off.

    If you do coke, you also need to get a Hep C test. (They won't do that in an ER because it takes time for the viral load to come back and can be expensive.)

    Traditional coke use causes microscopic drops of blood to be shed onto whatever you're putting up your nose (most dancers just use dollars). If someone used the same dollar before you, even if you don't see it, their blood got on the dollar. If they had Hep C, which is a spore former, the disease will live virtually forever ...can't be killed with basic boiling or bleach ...so you will then get Hep C (hence why I used to lecture the girls to use a new straw each time ...you're at a club, they're readily available ...it's an easy preventative solution).

    I don't say the Hep C thing to scare you ...it's just something to consider. Also if the coke or whatever drug is cut w/something bizarre, that can wreak havoc on your organs ....you just never know. If it's cut w/something odd, unless you show signs of distress and poisoning in the ER, they will not draw bloods to look for poisonous substances. Just because you aren't fatally dying right after ingestion/inhilation, doesn't mean there wasn't something toxic in it that could cause long term organ damage.

    No drugs. I'm clean and boring. No drugs, not even pot. No crazy party lifestyle. I dance, I come home. Once in a while I'll have a volka-cran or a glass of white wine, but it's rare. I've cut out alcohol altogether until this is figured out.

    Remember too, that not all hospital's tests are created equal. The major cities w/med schools usually have state of the art MRI, UltraSound, and CT scan machines and will see a hell of a lot more on an image than will usually be detected via the same test at a smaller hospital in even a mid-sized town. You're problem could really just be gall stones, and they just may not have shown up on the test. If they only used ultrasound and the stone is stuck in a duct, it can sometimes be missed due to shadowing, and therefore you'd need a CT scan. MRI is really best and you don't get the added radiation of a CT scan. CT scans are just cheaper, which is why they will usually use that before ordering an MRI.

    I didn't know that. I figure all CT machine's were alike, as long as they're current. Thanks for telling me this - I've never thought of it before.

    Hopefully that will give you more insight and you'll be able to pinpoint the source of the prob. Good luck and best wishes for a speedy recovery
    Thank you for that very long post. If you have anything else to add now that I've put in a few more words, feel free. I'm getting very frustrated with the doctors and my family - but as I said, today is better than yesterday so maybe this is clearing up. Welcome to the site! Hope you keep posting and looking around.

    Also - my WBC was high. Does that mean anything to you? I've googled and read up, but I can't see the two being connected.

    BTW - current theory is Pancreatitis brought on by gallstones which passed before my ultrasound and CT scans.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by 4everresolutions View Post
    Also - my WBC was high. Does that mean anything to you? I've googled and read up, but I can't see the two being connected.
    Your WBC is probably elevated because of the inflammation in your pancreas. A rise in white cells indicates infection or significant inflammation (or less common causes, such as corticosteroid use). The WBC differential is probably the most important thing here. If there are more neutrophils (a type of white cell) it may indicate an infectious process at work, which would make a certain amount of sense.

    Quote Originally Posted by 4everresolutions View Post
    BTW - current theory is Pancreatitis brought on by gallstones which passed before my ultrasound and CT scans.
    That sounds possible, but you're a bit on the young side and (I assume) the wrong body type for gallstones without some sort of a family or personal history ("fat, female and forty" is the alliteration for the typical gallstone patient).

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    *pokes pudge* I've gained since X-mas, but I don't think I'm that much of a fatty....

    Thank you for sharing that knowledge. I've decided you remind me of House, and GradGirl is Cameron. Or maybe 13. Not Masters though...I can't stand her.

    I'm in a happy mood because the pain wasn't so bad today.

    I'll comment on the content you posted once I'm rested tomorrow. Night night.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by 4everresolutions View Post
    I have an appointment with a specialist in April. Yay socialized medicine! Super long wait times for appointments. I think the doctors are crazy for expecting me to live like this for a month, but what can I do? I'm just a patient.
    If they've ruled out active bile duct obstruction and infection, there's really nothing a specialist could do to make it get better faster. The treatment for pancreatitis is basically supportive.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Hot chicken broth and a heating pad under the kidneys to increase circulation through the kidneys.

    CKXXX I believe has been battling pancreatitis for years. She can speak on being treated to you.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by ArmySGT. View Post

    CKXXX I believe has been battling pancreatitis for years. She can speak on being treated to you.
    Chronic pancreatitis (which is usually caused by heavy alcohol use) is somewhat different from the acute version. The probability of anatomical changes (some of which need to be dealt with surgically) is much greater, and it is much more important to replace some of the exocrine (digestive) functions of the pancreas for nutritional reasons.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    ^ HOUSE HAS SPOKEN!

    But I may message her if I see her around anyway.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Agrees with you in Masters. Her face bugs me. Specifically her chin?

    Did they rule out pancreatic cancer? Awful I know but necessary especially if you have to wait a month before being seen. Pancreatic cancer doesn't give you a lot of treatment time.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by FiendishGyrator View Post
    Did they rule out pancreatic cancer?
    Pancreatic cancer rarely presents with that sort of acute pain and elevated amylase and lipase, unless there is a secondary effect from a mass blocking a bile duct.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Thought I'd update - Ended up getting an MRI, apparently there is something wrong with my bile duct, it's too small or constricted or something. Doctor said that it was due to 'unlucky genetics' and not anything I did, which is a giant relief because back when this first happened I was convinced I had killed myself with my McDonalds habit.

    I've had one new episode since - but it wasn't as bad this time becasue I knew what to do from the get-go (no eating, chicken broth and heating pad and painkillers). I have another appointment in August with a different doctor who I'm hoping can explain a little more to me.

    Thanks to anyone who offered support! Appreciate it!



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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    FYI - A very famous racehorse had a similar problem with his bile duct, it kept him out of the 2011 Kentucky Derby.

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    I adore being compared to Horses, seriously you have no idea. Oh the things that does to me.




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    I DID mention it was a very famous horse.

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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Glad it's not due to your alcoholism!

  30. #24
    God/dess 4everresolutions's Avatar
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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by BringOnTheMen View Post
    I'm going to take this time to e-serenade 4ev.

    <333333
    Fucking WIN! I <3 this song! I hear it at work and I want to start galloping really sexily.

    I should stop with the galloping though as I probably won't be winning the Derby anyway, as SweetNaughty has already mentioned. Pancreatitis keeps us Stallons out of the races.



  31. #25
    God/dess 4everresolutions's Avatar
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    Default Re: In SO much pain - I have Pancreatitis! Anyone else?

    Quote Originally Posted by BringOnTheMen View Post
    Mmmm maybe we could gallop together.
    I am SUPER impressed with you right now.



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