anyone on here dealing w/ a mjor disease themselves....not family..or children, but you, yourself? such as cancer/lupus/heart disease/diabetes....things that affect your day to day and morbidity.
anyone on here dealing w/ a mjor disease themselves....not family..or children, but you, yourself? such as cancer/lupus/heart disease/diabetes....things that affect your day to day and morbidity.
June Cleaver stripper





Yup. Why do you ask? Recently diagnosed with something?




sure do...
I deal with a couple of things but it's low impact. It's not like brain cancer.





Yep. Y?
"You can close your eyes to reality but not to memories -Stainslaw J. Lec
Confuscius say: "Man who pull bra stap get bust in face"
Yes. Nothing immediately life-threatening, but with the potential to be.





Yes. What's up doc?





OP - if you want help, support or just an ear to listen, just let us know. You don't have to be too specific if you don't want. But I know it can feel hard and lonely. We're all here if you need us!
Also, check out Ginger Lee's Tumblr for a pick-me-up. She's an exotic dancer with Lupus and her tumble is a really lighthearted, genuine read.





I have interstitial cystitis. I was diagnosed at 18. I've had three surgeries to date. I have chronic nephritis and am in remission from glomerial (sp?) nephritis. I'll likely need a transplant eventually, (my husband has volunteered if that's the case) but I'm good as of today! I also have severe ADD, congenital dopamine deficiency, and chronic fatigue due to a bout with Epstein-Barr virus and a run with mononucleosis that nearly killed me. I aspired to be a doctor due to all of this, and even though I dropped out of school, if you need advice; I have a plethora of knowledge I'm willing to share!





I have a kidney disorder. As of today, I don't know yet if it is reversible or something I will have to continually deal with. The doctor put me on a very aggressive amount of steroids for 6 months. My 6th month is next month, and we will find out if it has gone or will I have to continue. He says the next option is a different medication, which has worse side effects.
Steroids are scary, and I was more scared about the side effects from them than I was about my kidneys. Knock on wood, I've only had to deal with 2 or 3 out of a possible 20 or so, so I try to remind myself I am lucky. Weight gain, stretch marks, moon face, etc will mean I can't work and then how will I support myself?
I'm wondering if I can control it myself without medication, but I am unsure. I won't have insurance at some point next year, so perhaps it's best I take these medicines while I have coverage. I have no idea what I will do after that.
I'm trying to stay positive, no point in worrying now before I have any news. The secondary ailments have subsided, but that does not mean my kidneys are normal. Only bloodwork can determine that. I've never had to deal with illness before in my life, so I think I took it all in stride. I terrified myself into thinking I may need dialysis, and was reading dialysis forums and getting sad before the doctor told me the results from my biopsy.
I still have normal kidney function, they are just inflamed which causes them to not be able to filter or control my blood pressure/cholesterol. Sometimes I feel like an old woman when I complain about high blood pressure when people piss me off.![]()
Women of color:
Shake your ass and preserve your heritage.
Bang those fucking drums.
Do it for the present and future generations.
Have fun and stick it to the man at the same time. (bad-dominicana)





^^ if you need any advice about kidney disease, feel free to PM me. I've done everything from steroids to long term antibiotics to surgery. I'd love to help you out any way I can even if it's just moral support. Kidney disease sucks the big one. Glomerulonephritis survivor here, with chronic leftover issues and severe Hunner's ulcers.
wow! love that everyone came out for this one.....hate that we have this in common......... so my story....i am 32, 'proly will live to see 40. type 1 diabetic my whole life. Lupus. Kidney Failure. Going blind due to Diabetic Retinopathy. Possible Congestive Heart Failure....don't know if my symptoms are correct..i have no insurance at the moment. Hormone issues. Neuropathy. I too was going to go to Emory Medical school, but cruel irony made me too sick to attend. Was all set to take my MCAT and then it all went down hill around '00. Even had a dr. to sponsor me....oh well. i just couldn't see spending all that time in school, just to croak as i received my degree lol. i have a very morbid sense of humor....you have to when you're basically a leper lol. some ppl can handle it..others get HIGHLY upset....
June Cleaver stripper
I'm so sorry, really don't know what to say. I hope you are able to find something that will make you smile every day. One day at a time...





Nothing life threatening but I do suffer from arthritis (possibly rheumatoid) and psoriasis which is a nasty skin disease. Both are more annoying than anything. Arthritis is courtesy of having been athletic (and no doubt dancing didn't help). I haven't been to the doctor in a few year (no insurance)so I suppose I could have something else.
OP, I'm sorry to hear you have major illnesses but many people do. In fact I've found that most people have something wrong. I don't know what to tell you except I hope things workout for you.
^^^ Good luck, Obscurity...





I admire your attitude. I wish you the best(everyone else in this thread too).





Aw! Many, many hugs to you darling. I'm so sorry you're going through all this. Med school is on my wish-list too, due to my many health issues, but I don't think I'd be able to complete a full intern or residence cycle because of my health....so it'll never happen for me either. It's hard to handle the reality that you might not be able to achieve something you really want because of health issues you can't control. Focus on what you can do. You CAN research your own illness individually and be your own advocate. Helps you feel more powerful.
Have you checked out Ginger Lee's tumblr? She's a feature dancer with lupus, and she's got a great funny/morbid attitude and brings a smile to my face everyday. A lot of her posts center on funny quotes/pictures and staying strong (emotionally and physically).
http://www.missgingerlee.com/
Keep your chin up and take it all one day at a time.
And take lotsa' naps! Nothing makes you feel better than a good cry and a nap.
XOXO!





Women of color:
Shake your ass and preserve your heritage.
Bang those fucking drums.
Do it for the present and future generations.
Have fun and stick it to the man at the same time. (bad-dominicana)








I have something too (a disorder of a vital body organ) and after reading this thred, I'm surprised to see that there's a few others on here that have/had what I have. Like some people here, I like to spend my spare time (Ive had more spare time lately, bein on moderate bed rest due to this problem in addition to the pregnancy) reading all about it on web md and other medical sites. Unfortunately I'm experiencing some realy bad side effects from it that effect my appearince and my motility so I'm glad Im not a stripper or work in a looks related and/or physically demanding industry. Actualy I'm not able to work my own job either, but thankfully I'd been paying into a disability/sick leave policy for a while so that covers me moneywise while I'm out for this and then the maternity leave. But yea this thred reminds me I'm not alone.




I have a kidney disorder and vascular disease - both diagnosed this year. I've had surgery for both in April and May - and it's still not right. More surgery on my arteries will be coming up before Christmas.....and the kidneys....don't know yet.
[SIGPIC][/SIGPIC]
"Good Girls keep diaries....Bad Girls don't have the time..!!"



Lupus, Raynauds, currently exploring the possibility Lymphoma (yes, cancer), and a plethora of mental illnesses.
I have failed to function as a normal person for a while now. I'm trying to get it together, we'll see though. Just gotta keep up with those meds.. :-/
~We Be Hustlin', Bitches Be Hatin'~




Cancer when I was 16/17...its been almost 10 years now and I am still alive and kicking.
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