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Thread: Pelvic Inflammatory Disease

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    Featured Member Spinnerette's Avatar
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    Default Pelvic Inflammatory Disease

    Does anyone have any experience with this? How were you diagnosed and what treatment was prescribed?

    Finally getting around to getting my own health insurance in the next month and I'm going to the doctor for a full screening of that area. I want EVERYTHING checked out. Tired of being brushed off when I complain about my symptoms (pain and sudden absence of libido when I was actually a RAGING nympho before). Frequent uti's and chronic BV. I mean wow. But the "professionals" I've seen so far just throw pills at me.

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    Default Re: Pelvic Inflammatory Disease

    Quote Originally Posted by Spinnerette View Post
    Does anyone have any experience with this? How were you diagnosed and what treatment was prescribed?

    Finally getting around to getting my own health insurance in the next month and I'm going to the doctor for a full screening of that area. I want EVERYTHING checked out. Tired of being brushed off when I complain about my symptoms (pain and sudden absence of libido when I was actually a RAGING nympho before). Frequent uti's and chronic BV. I mean wow. But the "professionals" I've seen so far just throw pills at me.
    A lot of these issues begin in the gut. Its an imbalance of pH due to sugar. Look into candidiasis. Especially if autoimmune problems run in your family (psoriasis, eczema, MS, arthritis, lupus, autism, schizophrenia, or anything else with an immune system basis).

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    Featured Member Spinnerette's Avatar
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    Default Re: Pelvic Inflammatory Disease

    Quote Originally Posted by GlamourRouge View Post
    A lot of these issues begin in the gut. Its an imbalance of pH due to sugar. Look into candidiasis. Especially if autoimmune problems run in your family (psoriasis, eczema, MS, arthritis, lupus, autism, schizophrenia, or anything else with an immune system basis).
    Thank you for the info, though I didn't think it had to do with candida as I've never had a yeast infection. Going to read up on it now.

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    Senior Member Hockogrocle's Avatar
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    Default Re: Pelvic Inflammatory Disease

    Quote Originally Posted by Spinnerette View Post
    How were you diagnosed
    A definitive PID diagnosis is surgical (laproscopy), but it rarely comes down to that. The diagnosis is usually based on symptoms, physical exam and history.

    Quote Originally Posted by Spinnerette View Post
    and what treatment was prescribed?

    ......

    Frequent uti's and chronic BV. I mean wow. But the "professionals" I've seen so far just throw pills at me.
    Pills pretty much are the treatment for PID. The current treatment guidelines specify using empirical antibiotics (antibiotics that will usually work even if you don't know the specific bacteria that is causing the infection) whenever there is a moderate suspicion of PID.

    Now, it's certainly true that someone should go over your history careful and try to ascertain the relationship between your antibiotic use (which can predispose you to BV) and your chronic BV (which can predispose you to PID). That's not something you can reasonably expect in an environment where people don't have a lot of time, such as an ER, however.

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    Default Re: Pelvic Inflammatory Disease

    I am on the waiting list to have a Laparoscopy to find out what is wrong with me. I have suffered with severe pain and other issues for around 7 years. I have only managed for so long as taking the Pill masks the pain(though not other things like bloating, fatigue etc.).

    As usual I have always been told the same basic stuff by my doctor (basically amounting to "just get on with it", "take this or that medication" which temporarily MASK symptoms) but I want to deal with the root cause of it all.

    I think it could be Endometriosis but ultrasound scans won't always show if that is present. After finally getting an ultrasound last year and being told "well, theres nothing there, it could be Endo but we can't tell without a Laparoscopy' and then being brushed off when I asked to be referred for one, a year later I manage to get to this point(who knows how long the wait will be).

    I am someone who tries to stick to natural/alternative 'medicine' but believe me if there was something they could give me that would actually help I would gladly take it, it is just so frustrating knowing that you are being offered bog-standard one-size-fits-all crap to put into your body, only for it to have so many other side-effects you give up on it.

    It's sad but I am actually really hoping they find something when they do the Lap as there is no way the sort of pain I have had is normal, and if there is nothing obvious there they will just send me away again. So far the ultrasound and internal exam showed nothing 'abnormal'. Maybe you would need to have a Laparoscopy if you get to that stage and are told everything 'should' be fine and theres nothing wrong.

    The only thing I can say is to help yourself in the meantime by taking care of your diet and exercise, and maybe research some herbs/natural supplements that can help. I am trying to keep my diet as healthy as possible and taking Fish oils, a Multivit & Mineral, Magnesium, Milk Thistle and Greens powder. I have also read about avoiding soya as it can have a negative effect on hormones due to excess phytoestrogens.

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    Featured Member Spinnerette's Avatar
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    Default Re: Pelvic Inflammatory Disease

    Thank you very much for sharing your story JadeJewel. I feel the same way. I want doctors to find something because once they do, hopefully they can fix it. I've been suffering with this for 3 years now and I'm tired of receiving generic prescriptions that only mask the symptoms. Uterine issues actually run in my family. My grandmother had to have a hysterectomy decades ago because of them and both my aunts and my mother have uterine fibroids. They're the worse in one of my aunts. She's never had children and yet the tumors make it look like she's 7 months pregnant. She's also in a state of near constant pain. Granted, part of her continued suffering is her stubbornness, but when she was first going for the issue (anemia, swelling, pain, excess bleeding), they could find nothing wrong. -___-;;; I would have thought at this point in science that reproductive organs weren't so "mysterious", but I guess not.

    I'm going to try to find a doctor who will take me seriously and get an in depth exam performed as well. I agree with you about changing my diet around though. It certainly hasn't been the best and whatever measure might bring me a bit more comfort at the moment, I should take it. Thanks again for sharing and I hope your issue is resolved sooner rather than later.

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    Default Re: Pelvic Inflammatory Disease

    Thanks. Look up info on xenoestrogens and the effects on hormones. This link is to a site on Endo but the info is relevant. It's shocking how many things can disrupt hormones, I can't see it being easy to avoid everything on this list but if we try to do as much as possible it should help.

    I have sworn by Milk Thistle for years for various things but since learning about estrogen dominance recently have upped my dose, as it is the liver that has to cope with filtering out all the excess estrogen as well as other toxins(hoping for some cellulite reduction as a bonus)!

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    Default Re: Pelvic Inflammatory Disease

    Jade - I am a severe endometriosis sufferer (stage 4) and I know exactly what you're going through. I had my first lap in January. They found the endo completely by chance, as they were really just going in to remove ovarian cysts (which were caused by the endo). If you want to manage it naturally, Google the Endometriosis Diet...I have read it has made a major difference in the lives of many women who suffer. The trick to managing endo naturally is keeping your body's levels of stored estrogen as low as possible. If you're heavier/overweight, reducing your body fat can help, because excess estrogen is stored in fat cells.

    Endo is a hard disease to deal with, mostly because doctors still can't figure out what the hell causes it. Plus its a permanent disease - there's currently no cure for it, only reduction of symptoms and management of pain. But your best bet is to seek out an endo specialist in your area. They're difficult to find, but a specialist will be way more effective in treating it than a standard OB/GYN.

    I hope you find a treatment that helps you...endo has greatly affected my life over the past year, seeing as all traditional treatments have failed for me. That's the main reason I'm getting into camming, to pay off my surgery/medical bills. Feel free to PM me if you need any more advice or just some support from a fellow endo sister

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    Default Re: Pelvic Inflammatory Disease

    Do you know anyone with a really good family doctor who they could recommend who can get you some referrals? I know one here He always listens and follows up everything. So many doctors just treat symptoms and don't worry about finding the source of the problem. It sucks!

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    Featured Member Spinnerette's Avatar
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    Default Re: Pelvic Inflammatory Disease

    Quote Originally Posted by JadeJewel View Post
    Thanks. Look up info on xenoestrogens and the effects on hormones. This link is to a site on Endo but the info is relevant. It's shocking how many things can disrupt hormones, I can't see it being easy to avoid everything on this list but if we try to do as much as possible it should help.

    I have sworn by Milk Thistle for years for various things but since learning about estrogen dominance recently have upped my dose, as it is the liver that has to cope with filtering out all the excess estrogen as well as other toxins(hoping for some cellulite reduction as a bonus)!

    http://endojourney.wordpress.com/200...xenoestrogens/
    My cycles are more or less "regular" (last month was the first time I've been late in over a year). Hence even suggesting a hormonal imbalance was met with a dismissive hand wave and a frown (seriously). Definitely headed towards a more "natural" lifestyle once I can get my husband's meat and cheese ass to stop fighting me so hard on it.

    Quote Originally Posted by Jessie_tinydancer View Post
    Do you know anyone with a really good family doctor who they could recommend who can get you some referrals? I know one here He always listens and follows up everything. So many doctors just treat symptoms and don't worry about finding the source of the problem. It sucks!
    The only person with information like that would be my mother and that's back home, about 8 hours away. I'll figure something out though.

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    Default Re: Pelvic Inflammatory Disease

    I understand what ur going threw with the BV it sucks i used to get that all the time ....
    that and yeast infections i googled all the time trying to find home remedies
    because it was soo frustrating just getting pills for it to come back 2 weeks later
    i tried alot of different things and this went on for about a year i felt so gross and uncomfortable and i used to cry about it.... I started to drink a ton of water and the thing that i saw worked was i cut waaaaaay back on sugar and when i do have something sweet its sugar free.... every once in awhile when i know i havent had sugar in awhile and i know my body can handle it ill have a candy bar or something. If you drink alot of water and cut back on sugar ALOT ull see a difference and ull start to know ur body. I've been bv free for like 2 years now and i get the occasional yeast infection but thats it!
    Thank god its a nightmare!

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    Default Re: Pelvic Inflammatory Disease

    Quote Originally Posted by SashaKittyXXX View Post
    Jade - I am a severe endometriosis sufferer (stage 4) and I know exactly what you're going through. I had my first lap in January. They found the endo completely by chance, as they were really just going in to remove ovarian cysts (which were caused by the endo). If you want to manage it naturally, Google the Endometriosis Diet...I have read it has made a major difference in the lives of many women who suffer. The trick to managing endo naturally is keeping your body's levels of stored estrogen as low as possible. If you're heavier/overweight, reducing your body fat can help, because excess estrogen is stored in fat cells.

    Endo is a hard disease to deal with, mostly because doctors still can't figure out what the hell causes it. Plus its a permanent disease - there's currently no cure for it, only reduction of symptoms and management of pain. But your best bet is to seek out an endo specialist in your area. They're difficult to find, but a specialist will be way more effective in treating it than a standard OB/GYN.

    I hope you find a treatment that helps you...endo has greatly affected my life over the past year, seeing as all traditional treatments have failed for me. That's the main reason I'm getting into camming, to pay off my surgery/medical bills. Feel free to PM me if you need any more advice or just some support from a fellow endo sister
    I have stage 4 endo as well. I've had 3 surgeries so far with 3 different doctors. It is very expensive treating this disease, I had to fight my insurance company to pay for the treatments. I'm now a patient with the Center for Endometriosis Care (CEC) in Atlanta, and I feel about 90% better. But that 10% makes it difficult sometimes.

    I also follow the endo diet as well. This has also helped my symptoms, along with exercising. To see others in this forum that are having the same issues, let me know that I'm not alone. This forum has really helped me deal with my health issues.

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