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Thread: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

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    Default To all of you who may be having tummy UPDATE #14

    I want to share something cause I wish I someone would have told me. Early spring of last year I began to feel bad. I thought I had a bug or maybe even food poisoning. I went to many doctors who did not know what I had and even ended up going to Puerto Rico since my adoptive parents are doctors and felt they could help. After a month over there and no relief or diagnosis I had to come back to my husband and kids.

    In September I found a gastro who did a colonoscopy but the results came back as "I did not find anything wrong. You had a few polyps which I burned but everything else seems normal." I broke down in tears and was pissed because I knew I was not imagining this. About a week later he calls and says "I know what you have" I sat up and said "Ok, tell me" he said "you have C Diff. It is a bacterial infection in your intestines which is hard to detect but very dangerous and hard to treat" I once again broke down but from some relief in knowing WHAT I had!

    This is what C Diff is http://www.mayoclinic.com/health/c-difficile/DS00736

    It is diagnosed by stool samples (not fun to do but just wait, it gets worst.) He started me immediately on a medicine called Flagyl. 2 weeks of this antibiotic and I was feeling better but it did not last. I went back a few weeks ago because I can barely stand with out feeling a "passing out" feeling and my stomach feels like it is about to burst. Once again I was given this medicine but this time it seemed to not be doing anything but making me feel worst. My regular doc thought I had a sinus inf but no lady no.

    Last night I ended up in the ER. 4 IV tries later, finally they got a vein, got some pain med and nausea med. I felt some relief for a few minutes but they had me eat once more to see how I felt and puketastic! was the result. ER doc called GI and they believe this time they need to take another approach to this condition. Now as I lay there in the bed and hubby waits impatiently so we can gtfo of the hosp doc comes back and says "There is a treatment that has the best results in getting rid of this" so I am like "lay it on me doc" the next words that came out of his mouth had me almost falling off the bed, "The procedure is called Fecal Bacteriotherapy which basically means a poop transplant" SAY WHAT?! A poop transplant?!

    They insert tubes via nose and mouth to go down in to the tum and yeah put poo inside of you.

    http://en.wikipedia.org/wiki/Fecal_bacteriotherapy What it is.

    Now I have to go to the GI later on and discuss the treatment and while it seems and gah it's gross, it may be the only thing that will help me. I am sorry about sharing this but I am not because I do not want anyone to go through what I have been through, the pain, suffering, spending ridiculous amts of $$$ on docs with out any results or treatment. If you click on the link you will see the symptoms and I hope to have helped someone or perhaps know in case if not you but someone you love seems to be going through the same thing.

    Thanks for your time.

    Last edited by High-Heel-Lover; 03-13-2012 at 12:06 PM.


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    OMG! Sooo sorry. Having any kind of condition is awful and my heart and prayers go out to you. Nothing is worse then not knowing so at least you have a diagnosis and a treatment plan. I actually saw an episode of House where they used this treatment. Good luck to you and I hope it all turns out well.
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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Thank you


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    SOOO weird... my roommate is studying to be an immunologist and worked in a lab studying c. difficil and I just read an article of his about the success of fecal transplants in solving the problem. Grossness aside, it is oftentimes the best way to go. Hope you're feeling better.
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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    I went to the GI and he ordered a CT scan. No transplant talk so that's good. Also told to stop the FLagyl since I seem to be allergic and why I am not getting better. Just wanted to update. Still C diff is no fun people!


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    oh my goodness!!! i suffer chronic disease so i feel your pain!!1 it esp. sucks when a painful disease has a gross side lol. none the less, it's a DONORS POO!!!!! that they infuse...jeeze louise! feel better!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    June Cleaver stripper

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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Thanks for this. I called my friend her landlord is in the hospital with this. She said they didn't know what she had but said today it is this but they're treating her with iv fluids and antibiotics at the moment.

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    Veteran Member Obenta's Avatar
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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Umm... sloooow down there!

    Have you gotten a second opinion about your Clostridium Difficile treatment?

    It's actually not hard to diagnose at all. (I'm surprised your doctor said that. It's not a rare condition) It's a simple test of a fecal sample for the levels of the toxin produced by the C. Diff bacteria. The toxin irritates (and eventually can damage) the lining of the intestines. The intestines produce mucous to help protect themselves from the toxin - resulting in diarrhea/mucousy feces. It's simple to test for the toxin and diagnose the condition.

    I didn't see any mention of it in your post, but has your doctor TRIED Vancomycin? It's usually the second option (or the first option if Flagyl isn't well-tolerated). You can take it orally and if that doesn't get the C. Diff under control, it can be given intravenously in higher doses.

    Why not try a couple of rounds of Vancomycin before spending the money for the bacteriotherapy? (I'm assuming bacteriotherapy is expensive) Maybe bacteriotherapy is better, but if a cost issue, it wouldn't hurt to give Vancomycin a shot.

    My daughter had a horrid C. Diff infection for months when she was less than a year old. It was difficult to diagnose only because we had to guess her symptoms - she was 5 months old, so could not tell me what was wrong or where it hurt. She was also nursing at the time, so we looked at my diet first. One round of Vancomycin (specially compounded for babies) took care of it.

    I understand your agony. I had to watch my little baby go through it. *hugs*
    Last edited by Obenta; 03-09-2012 at 01:38 AM. Reason: typo

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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Quote Originally Posted by High-Heel-Lover View Post
    I went to the GI and he ordered a CT scan. No transplant talk so that's good. Also told to stop the FLagyl since I seem to be allergic and why I am not getting better. Just wanted to update. Still C diff is no fun people!
    A CT scan?

    For what?

    Does he think your intestines have suffered a perforation from the C. Diff toxin? If he doesn't think so, then why is he ordering a CT scan? (Milking you for money?) If no perforation was found during the colonoscopy, why the CT scan?

    My daughter was allergic to Flagyl too (or was too young to tolerate it).

    I would get a second opinion and ask about Vancomycin.

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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    I have not had any luck with doctors in the past year. Gone to many, hell for my back issues went to Ortho for 4 months before he said " nothing is wrong with you." I went to a pan management center and they said "Oh you have a cluster of nerves pinched" and this coming Monday getting my second steroid spinal inj.

    The GI said he now doesn't believe I have CDiff since it didn't show in the last stool sample which was done 3 weeks ago. Today marks day 1 with out the Flagyl and I feel a bit better. I really don't know what else to fucking do! I feel like a damn yo-yo! I have nausea, at times puke, I have diarrhea which at times and sorry for the TMI, is like mucus. The cramps, the gas, the pain! Constant head aches and I am dizzy all the time and have lost weight with out even trying. After the whole conversation of "I am not well, still have symptoms and now feel even worst while on this second round of Flagyl" he said "It can just be IBS" *head desk* what? I do think the medication was not helping at all.

    All the blood work came back normal. I have gone through endoscopy, colonoscopy, blood work and meds galore! I am so damn tired of all this doctor stuff that I am not trusting any. Yesterday I sat in my shower, crying like a child because I honestly do not know what else to do. The CT is set to be done on Sat, it is an abdomen and pelvic scan with oral and IV contrast.


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Since I can't sleep and head racing I have a question. I have had 3 surgeries, 1 due to an ectopic pregnancy, 1 days after since the internal sutures opened and a cyst ruptured and the umbilical repair after a hernia developed. Here is my question, could they have left something inside of me which can be causing problems?


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    i wish i had advice but i'm sorry you are going through this i'm here for you and praying for your speedy recovery to health!! <3

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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Dude, let me tell you something the dye used for ct scans is evil! EVIL!!!!


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    The results are back from the CT scan and I have a rather large growth on my liver. I don't think I heard much after growth on liver but then composed myself and I need to get an MRI ASAP. I have to wait for ins approval so that would be 1 to 2 days. Guess my sister was right and I am glad I argued to have the damn thing done. I am scared.


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Wow hoping you'll be o.k.

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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Thanks, still waiting for the ins to give the ok for the MRI. No longer in a panic mode, might as well save that for when and if needed lol oy life.


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Quote Originally Posted by High-Heel-Lover View Post
    The results are back from the CT scan and I have a rather large growth on my liver. I don't think I heard much after growth on liver but then composed myself and I need to get an MRI ASAP. I have to wait for ins approval so that would be 1 to 2 days. Guess my sister was right and I am glad I argued to have the damn thing done. I am scared.
    Well, shit. I thought you were just talking about C. Diff, which is why I asked why the CT scan.

    So you have a C. Diff infection and a growth on your liver too? (

    Best wishes to you!

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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    My sister, IDK why but glad she did, insisted on it. See the last test results on the stool did not show that the C Diff was active but I was told by the doc since the symptoms where back to start taking the med as soon as I dropped the sample off. I did start the med, got worst and ends up I am allergic to the fucking Flagyl. Before the doc said to stop it I told him my sister wants me to get a CT and with hesitation and one pissed off me! He said "Ok, lets get one." I wasn't expecting anything to show up since he said "It's probably IBS" but no.

    I can't sleep. Even was tempted on reading a book for the first time since like 1st yr of college, which I didn't finish! But put the damn thing down. I stood like a statute inside the hall, looking at my kids while they sleep, counting their breaths and wondering what they are dreaming about. I hugged DH and I think I'm having some sort of panic attack but he works so hard and is so tired that I don't want to bother him.

    You know you live because you breath, and you go and do every day things cause you have to but you find them monotonous, stupid and boring but out of all the hellish things that have happened to me in my life, this is the best I've ever been! Ain't that something? And I'm scared cause what if something is really wrong? What if I don't get to see my babies grow up? I am so far from being the perfect mother, well I've never met one so who knows if there eve is one, that I'm very hard on myself about it but at least I am not a monster. I love my boys you know. They are the kindest little creatures, funnier than any comedians out there, clever and loving. The big one is so damn spontaneous, creative and bright. The little one is so tender, kind and funny. They are great little people and they are mine, I made them.

    They have to be sick of me being sick. They often ask me "mommy when is your body going to get better so we can play like we used to?" it breaks my heart and I just want to pretend, ignore all the pain and get down with them, just run, dance and be free with them but I can't. There is only so much I can do before I push myself too hard and then it just gets worst. Now this thing with the liver has me thinking so many things that I just never really wanted to think about. I don't like it, I don't like it at all. I used to be in such a mental fog and now I'm not, and pain is so much more intense.

    I remember the first time I fell in love, how intense it was, how incredible it was, how out of this world it was and yet it is minuscule compared to how much I love my kids. They push me so hard but never to the point where I don't love them, I can't say anyone else has that ability and I want to see them grow up, be happy, do things that fill their hearts even grander than the way they fill mine. I don't want them to ever suffer. I don't want them to ever feel pain. I know it is not realistic but I can dream.

    I know this is stupid, to feel so damn scared cause I have been a tough girl for many years but I am and I hate it! I also don't want DH to feel pain. You know what a saint is? well huh, DH could use that title. Yeah he's got some annoying things, like I do too but I can see and feel his love. He loves this nutty, goofball, animal loving, maniac lol Why? I have no idea, to this day I still think I ruined his life but I guess not if he's still here and still loves me.

    I know everyone has problems but I just have to get this out. I wish life was easier. I don't get why we are here, go through some hardcore shit, fall in love, become happy and then it is taken away, why? I mean we all die right and for what? It is not fair, it really isn't. I'm getting ahead of myself, or my brain is, I can't help it but I'm really sad, I hate being sad! If I could grab sadness by the throat and choke it, I would. End it so those I love never have to deal with it. Again, I can dream. I don't know what I am going to do for the next few hours but I hope I can calm down and do something productive.

    Thanks for reading.


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    I just learned about fecal transplants the other day and while I think that they are gross, they are also fascinating. They were discovered to work when trying to find a cure for cholera - nomads would eat camel poop when they started to display the first signs of them and they became Westernized because of that.

    Hope everything works out with your medical problems. That sucks and I can't imagine what it must be like to be going through all that
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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Ok a new updated. Sorry for just being all "my problems and not getting involved in many threads" but I'm just trying to IDK vent I guess. My sister saw the CT scan results and she said it's not an actual growth, it is like bleeding or some fatty thing which can be caused by drinking (I don't really drink much) or medications which is the most possible thing since I have been on meds for a while. I am still waiting on the MRI thing. Gotta love health ins.

    The poo transplant is gross! But hey if it's does the job it is amazing! How they discovered it IDK but damn, talk about giving a shit!


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    Default Re: To all of you who may be having tummy issues, mostly the runs, pain & dizzy

    Wishing you a speedy recovery.

    PS Based on your above post you sound like an awesome mom I could feel your love for your babies right through the screen.
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    ho ho ho ho merry banmas!!!!

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