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Thread: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depressed

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    Veteran Member illuminaughty's Avatar
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    Default Does anyone else here have ulcerative colitis or crohn's disease? I'm so depressed

    I have been having the worst year of my life.

    I haven't worked (regularly) in almost a year because my health issues have taken over my life.

    I am not officially diagnosed yet but I've been trying to get diagnosed all year, had 4 colonoscopies / endoscopies, and my last one was the worst yet. Inflammation in almost my entire colon.

    I'm waiting for biopsies, I'm being told it's either crohn's or UC but "looks like crohns"

    I feel so defeated and suicidal.

    I don't feel sexy anymore, people constantly talk about fucking my ass and want me to play with it which triggers me and reminds me of whats going on.

    Apparently I'm going to be on lifelong horrible medications that cause hair loss, weight gain, cancer, possible surgeries, infections.

    One or the worst fears is having to get an olostomy bag, I feel like at that point my career would just be over.

    Who want's to see a woman with a shit bag? How would I ever be okay being on cam with something like that?

    I don't know how to get on camera anymore and I don't have a support system.

    Does anyone else struggle with this that cams?

    I need support ��

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    hey girlie,
    what are your symptoms? i see you are from the united states.
    i think you should consider visiting a different country for treatment, maybe france or mexico.

    i have hypothyroidism and i have gut issues that cause slow emptying and looks like a have a preggo belly some days.
    ive had this issue off and on for 5 years. i had a sever colitis infection (bacterial) about 5 years ago and havn't been the same since.

    i dont know what your issue is , but often in the usa medicine is limited and doctors think they know it all.
    also they like to force surgery or over prescribe things to collect more money for the insurance companies ect
    i had treatment in france and they told me it was just slow moving from my hypothyroidism that was 6 years ago.


    i feel they listen better here in mexico to my issues and sometimes have other medicines not available in the usa.
    for example i had kidney-stones a few months ago and they gave me a pill which usually is for mens prostates in the usa (but the FDA wont certify it for use on kindey stones for some fucking reason)
    and i was able to pass the stone from those pills without ANY pain or even knowing i passed the stone.
    it saved me from having to have an operation. to remove the stone .
    if i was back in the usa they would have had to use a stint or i would have had so much pain to pass that stone.

    i had a recent flair up of colitis like symptoms in cancun
    and i recently went to a cuban doctor here for treatment (we have access to many cuban doctors)
    treatment here in very good if you find a specialist and very affordable. they will listen to you and help you in a way they cant in the usa.
    we have medicines and options that you dont have access to.

    my thyroid medicine has helped me a bit, my hair isnt falling out as much anymore and i am not as tired (i was sleeping 13 hours a day)
    but i still have symptoms of issues with my colon and swollen intestines.
    i am working with a specialist here.

    so i was advised to cut out all carbs and it has helped me so much. i eat very clean and that helped about 20%
    i also take some pills that are for faster emptying for when i need it. and they do work
    for the first time i have had my flat stomach back .

    also i have been able to go for lymphatic drainage massages and for my colon(since its so cheap here i can do it often)
    and help my body to get better and for stress.

    if you make good money camming you can for sure afford to get treatment in cancun, mexico city, or in france or cuba.

    its only $50 for the best specialists in france or mexico or less ...when i go and it includes ultrasound and all that
    and the pills i am taking i think were about $10
    without insurance.

    i dont know exactly what your symptoms are.. but
    you should look into other options.

    dont give up! pm me on here if you need someone to talk to or if there is anything i can do to help you.
    you arent alone. i am sure my issue isnt as bad as yours, but dont give up.. there are options.

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Quote Originally Posted by illuminaughty View Post
    I have been having the worst year of my life.

    I haven't worked (regularly) in almost a year because my health issues have taken over my life.

    I am not officially diagnosed yet but I've been trying to get diagnosed all year, had 4 colonoscopies / endoscopies, and my last one was the worst yet. Inflammation in almost my entire colon.

    I'm waiting for biopsies, I'm being told it's either crohn's or UC but "looks like crohns"

    I feel so defeated and suicidal.

    I don't feel sexy anymore, people constantly talk about fucking my ass and want me to play with it which triggers me and reminds me of whats going on.

    Apparently I'm going to be on lifelong horrible medications that cause hair loss, weight gain, cancer, possible surgeries, infections.

    One or the worst fears is having to get an olostomy bag, I feel like at that point my career would just be over.

    Who want's to see a woman with a shit bag? How would I ever be okay being on cam with something like that?

    I don't know how to get on camera anymore and I don't have a support system.

    Does anyone else struggle with this that cams?

    I need support ��


    western medicine has its place. The US is developing gene therapy not available anywhere else, but the US medical system is all about throwing pills and procedures instead of finding the cause!

    so what happened to me is a dr prescribes a steroid prednisone which destroyed the stomach lining! Stressed didn’t cause the disease, but stress made it impossible to heal-at 24! The doctors wanted to run all these tests, but my gut instinct was to heal myself. About 5 years later, I healed it myself. You know part of the cause was stress. The body is not just body parts. It’s part of a whole. Body, mind, and spirit.

    We especially in America are so disassociated from our bodies. All the politics craziness is caused by disassociation from the soul. You can’t do hurtful things the other people and be healthy. Trauma actually releases neurotoxins in the brain. Everytime some LIES it releases toxins in the brain! So when we say someone is toxic their brain is literally stewing in neurotoxin.

    Point being is we are so dissociated from our bodies. Our bodies know EXACTLY how to heal and tell us how to live life, but society convinced us we couldn’t possibly know how to take care of ourselves, so just trust the authorities. Don’t get me wrong, I trust medical professionals, but I trust my gut instincts more.

    Anyways, you need to find wholistic care. Which is cheaper anyways. Starting doing research yourself. Dont give up. Start educating yourself and talk to other people on online forums to figure out what works and what doesn’t work as well as getting support. You might have to try several things before you figure out what’s wrong, but the body is meant to heal itself. there’s a small chance you could have something untreatable that’s a chronic issue, but even that can be improved with the right self care
    Focus more on what you want than on what you don’t want

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Quote Originally Posted by illuminaughty View Post
    I have been having the worst year of my life.

    I haven't worked (regularly) in almost a year because my health issues have taken over my life.

    I am not officially diagnosed yet but I've been trying to get diagnosed all year, had 4 colonoscopies / endoscopies, and my last one was the worst yet. Inflammation in almost my entire colon.

    I'm waiting for biopsies, I'm being told it's either crohn's or UC but "looks like crohns"

    I feel so defeated and suicidal.

    I don't feel sexy anymore, people constantly talk about fucking my ass and want me to play with it which triggers me and reminds me of whats going on.

    Apparently I'm going to be on lifelong horrible medications that cause hair loss, weight gain, cancer, possible surgeries, infections.

    One or the worst fears is having to get an olostomy bag, I feel like at that point my career would just be over.

    Who want's to see a woman with a shit bag? How would I ever be okay being on cam with something like that?

    I don't know how to get on camera anymore and I don't have a support system.

    Does anyone else struggle with this that cams?

    I need support ��
    Even though I have not endured this myself; my best gf from kindergarten had crohn's and diagnosed when 10. She had part of her colon removed in surgery before she was 11. Even though it was a very severe case of crohn, and she had chronic pain since that time on (with peaks and lows), she didnt need any further surgerys ,(at least not for the 10 years that i still was in contact with her), and also did not need a olostomy bag
    I know every case is different, but just wanted to put this out here. Bec i understand your fear. I hope knowing about others with severe crohn (even needing surgery) that could go without having to go as far as getting a olostomy might ease your fear a tiny bit.

    As of medication; are you talking about biologics? (In line with humira?). I have chronic inflammation too (bechterew; reuma... which can cause spine to loose cartiledge and become all bone, no movement possible in that part of spine nor treatment if the fusion happens) and was on humira for 1 year in the past before I decided to walk my own route and go with (anti inflammatory; cutting out starch as much as possible, no refined sugar) diets and a ortho moleculair therapist.
    I agree with above post; diets can help a big way with chronic inflammation (and auto immune disorders).
    I have had heavy meds against inflamation for 4+ years ( of it since almost 2), if you need anyome to talk with you can pm me (even though we dont have the same illness)

    Even when you have such a big diagnosis, and scary one as crohn there is still a lot that you can do to ease your inflammation. I am sure of this bec I was also in chronic pain, unable to work and a lot of days coudnt even move.
    The doctors told me i had to take their meds bec else it would be on me if my spine would fuse. At first it helped, but the side effects were getting worse and worse unti this made life a living hell. So my advice is to read a lot about how you can ease your inflammation. A lot of info online, also books. And dont take words from doctors as solid, listen to your own body and create your own path. Its good to have doc as help, but dont rely on them only


    sorry for typos etc I was in a hurry, and english is not my mother language
    Last edited by IvyRose; 10-30-2020 at 12:40 AM.
    You can have everything in life you want, if you will just help enough other people get what they want - Zig Ziglar

    "Be thankful for the troubles of your job. They provide about half your income Robert R. Updegraff


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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    I've been following a MFC model be successful with her ostomy bag, she even won an XBIZ award (first ostomate model to win an awars in the industry).
    I can let you know who she is if you dm me, so you can ask her stuff etc.. Not sure if i can post her name here

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Hey I don't post anymore because I'm pretty much out of PSO but my wife has ulcerative colitis and has had it for the last 5 years. She has excellent results with Entiviyo. It's an infusion drug and she goes in once every six weeks. She's had no hair loss from the drug. She does have to have her liver and lungs monitored but so far everything has been fine. She is living a normal life and this after her disease becoming so severe five years ago that she had a lengthy hospital stay and it was touch and go for a minute, she had to drop out of school it was horrible. Her current doc specializes in UC and she's awesome. Sometimes it's a matter of finding the right people. Please don't lose hope. My wife started out with a prognosis that was not good and would have involved surgery, right now it looks like something that won't be needed. So just know there can be a light at the end of this tunnel.
    "You want to fuck with eagles you have to learn to fly"- Heathers
    Quote Originally Posted by Graceface View Post
    ho ho ho ho merry banmas!!!!

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    I'm not in the same boat as you, but I'm feeling you so hard.....

    I recently ended up with a uterine prolapse. My cervix is only about an inch from the entrance to my vagina right now so, no penetration. No money for surgery. I'm also going through perimenopause. So no sex drive. At all. Even with hormones.

    Every time I reach down on cam to touch her I am reminded that I can't do anything. It triggers me. I don't feel sexy anymore and the last time I actually did have an orgasm on cam the pain was so bad I almost threw up. The guy asked me if I was okay because my face went white. It's destroying me emotionally, physically and financially. I can't even have sex with my husband and it's causing a lot of marital frustration.

    Even though it is not the same thing and nowhere near as severe as what you are dealing with, a lot of your post hit me right in the feels. I'm so sorry...........

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Hey illuminaughty,
    I rarely go on here anymore but I felt compelled to log in and reach out to you. I would HIGHLY recommend looking into a special diet for your Crohns/ UC. I've known people that have this and a good diet to help manage the symptoms is a must. It's scary, yes, but it's very possible for it to be managed and live a great life. Some peoples symptoms are so severe they need surgery and meds galore, but others have it managed with a good lifestyle and minimal meds for flare ups. Unless I missed something (sorry if I did), you don't know which you'll be yet, so try to think positive.

    I hope to not come across as dismissive at all. In fact I relate to your fears very much! This year I was diagnosed with colon cancer. I had a lot of bad symptoms...I seriously thought I had UC. They caught it just before it was metastatic. I had part of my colon removed and I'm currently finishing up my chemo. When I got diagnosed all I could think of is I need to go back to camming to pay my bills, and then it hit me- how in the F am I gonna cam with a colostomy bag?! I felt sooo defeated. I knew I'd be going back with no regulars and a freaking bag, no hair, and on top of that my partner is an "ass person". I truly debated offing myself because I knew this wouldn't be an easy road.

    Well, I lucked out partially! My surgeon did great and I didn't need a bag. I am losing my hair...I have a few patches BUT I'm slowly losing it and I had so much hair to begin with, no one even knows. Of course chemo still sucks, low sex drive, some scars, and a high chance of returning due to my stage- so it's not all sunshine and unicorns. My point is we don't always know what the future holds. I felt much better mentally when I let go and just let it be a little. I'm trying to hold out faith that this will get better and this is just a bolder in this road called life. Sorry if that's all too cliché, but it's helped me.

    I'll be sending you some positive vibes! It sucks now, but you WILL get through this!

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Hey, Girl.

    I have IBS, I'm also supposed to have colonoscopy, as colon cancer took my dad.

    I have a bloated, fat belly (previously flat).
    I manage IBs by not eating fried, greasy foods & dairy. (Except yogurt, which helps, also grapefruit, which's a cleanser)

    I have a great gastroenterologist.
    Haven't been able to see him, or get the needed test.
    Last year, from calling his office, talking to a nurse, they had me come in right away, cause possible cancer scare, when I saw him, a couple things I thought were pointing in that direction, were ok.

    Anyway, I know this isn't what you're asking, but I wanted to show some support.

    I hope you can get some good help.

    Best to you, take care.


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    Default how to cam with chronic / undiagnosed / misdiagnosed health issues?

    tl:dr: I have been sick for over a year with a mystery illness / infection that is effecting me and my boyfriend. How do people in similar health situations or chronic illnesses get on camera and make money? do you have any tips?

    Hey everyone so I have been camming for 8 years. The past year has been an absolute nightmare. I have been dealing with health issues (gi related) and my whole life has been sucked into figuring out what's going on.

    Long story kind of short me and my boyfriend starting getting sick with gi issues around the same time last January. Since then I have had 3 colo / endoscopies and I have been diagnosed with crohn's disease, ulcerative proctitis, chronic gastritis, chronic inflammation in my esophagus, GERD. All the meds I were given made me even more sick.

    Me and my boyfriend have the same igg/igm levels for this particular virus called cytomegalovirus and that is as far as we have gotten.

    We have been to over literally 30 doctors combined, we live in the US, and we cannot get an answer.

    It is very obvious we have some type of infection or co infection, but we are not able to get treatment.

    My entire camming life has gone downhill because of this. I have never been this scared and depressed in my life. I just cannot for the life of me find a way to get on cam and act normal.

    The few times I did go on cam (about 5 times in the past 12+ months) I have had panic attacks and extreme anxiety and I had to sign off.

    It was so bad that one of my regulars has become so fatigued from talking about my health issues in our conversations he has totally pulled away from me. Even though he would constantly ask over and over again to talk about it. I would try to change the subject, lie and say I was feeling better, but he knew I was having problems. He has known me for 7 years.

    So with that all being said, how the hell do you ladies who have been through situations like this still function to make money?

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    Veteran Member illuminaughty's Avatar
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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Quote Originally Posted by MaeAnything View Post
    Hey illuminaughty,
    I rarely go on here anymore but I felt compelled to log in and reach out to you. I would HIGHLY recommend looking into a special diet for your Crohns/ UC. I've known people that have this and a good diet to help manage the symptoms is a must. It's scary, yes, but it's very possible for it to be managed and live a great life. Some peoples symptoms are so severe they need surgery and meds galore, but others have it managed with a good lifestyle and minimal meds for flare ups. Unless I missed something (sorry if I did), you don't know which you'll be yet, so try to think positive.

    I hope to not come across as dismissive at all. In fact I relate to your fears very much! This year I was diagnosed with colon cancer. I had a lot of bad symptoms...I seriously thought I had UC. They caught it just before it was metastatic. I had part of my colon removed and I'm currently finishing up my chemo. When I got diagnosed all I could think of is I need to go back to camming to pay my bills, and then it hit me- how in the F am I gonna cam with a colostomy bag?! I felt sooo defeated. I knew I'd be going back with no regulars and a freaking bag, no hair, and on top of that my partner is an "ass person". I truly debated offing myself because I knew this wouldn't be an easy road.

    Well, I lucked out partially! My surgeon did great and I didn't need a bag. I am losing my hair...I have a few patches BUT I'm slowly losing it and I had so much hair to begin with, no one even knows. Of course chemo still sucks, low sex drive, some scars, and a high chance of returning due to my stage- so it's not all sunshine and unicorns. My point is we don't always know what the future holds. I felt much better mentally when I let go and just let it be a little. I'm trying to hold out faith that this will get better and this is just a bolder in this road called life. Sorry if that's all too cliché, but it's helped me.

    I'll be sending you some positive vibes! It sucks now, but you WILL get through this!
    WOW this is so scary, I am so happy they caught the cancer so early and you are okay! thank you for sharing your story and I am wishing you a speedy recovery!

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Quote Originally Posted by moneybags View Post
    western medicine has its place. The US is developing gene therapy not available anywhere else, but the US medical system is all about throwing pills and procedures instead of finding the cause!

    so what happened to me is a dr prescribes a steroid prednisone which destroyed the stomach lining! Stressed didn’t cause the disease, but stress made it impossible to heal-at 24! The doctors wanted to run all these tests, but my gut instinct was to heal myself. About 5 years later, I healed it myself. You know part of the cause was stress. The body is not just body parts. It’s part of a whole. Body, mind, and spirit.

    We especially in America are so disassociated from our bodies. All the politics craziness is caused by disassociation from the soul. You can’t do hurtful things the other people and be healthy. Trauma actually releases neurotoxins in the brain. Everytime some LIES it releases toxins in the brain! So when we say someone is toxic their brain is literally stewing in neurotoxin.

    Point being is we are so dissociated from our bodies. Our bodies know EXACTLY how to heal and tell us how to live life, but society convinced us we couldn’t possibly know how to take care of ourselves, so just trust the authorities. Don’t get me wrong, I trust medical professionals, but I trust my gut instincts more.

    Anyways, you need to find wholistic care. Which is cheaper anyways. Starting doing research yourself. Dont give up. Start educating yourself and talk to other people on online forums to figure out what works and what doesn’t work as well as getting support. You might have to try several things before you figure out what’s wrong, but the body is meant to heal itself. there’s a small chance you could have something untreatable that’s a chronic issue, but even that can be improved with the right self care
    This has been my exact experience!

    I was taking budesonide for 4 weeks, and my constipation, pain, bowel movement shape, appetite, ALL got worse.

    I was then taking oral mesalamine for 6 weeks, the same thing began to happen and I started having such horrible abdominal pain one day I was going to go to the hospital. I stopped the mesalamine and within 3 days I was feeling more normal again.

    So the 2 major meds (steroid and anti inflammatory med with immunomodulating effects) all made me worse!

    This has led me to believe without a doubt that this is an infection. I am losing my mind over this!

    you NEVER realize how important you health is or how much you take it for granted until you face a serious health issue.

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    Veteran Member illuminaughty's Avatar
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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Quote Originally Posted by bigbum View Post
    hey girlie,
    what are your symptoms? i see you are from the united states.
    i think you should consider visiting a different country for treatment, maybe france or mexico.

    i have hypothyroidism and i have gut issues that cause slow emptying and looks like a have a preggo belly some days.
    ive had this issue off and on for 5 years. i had a sever colitis infection (bacterial) about 5 years ago and havn't been the same since.

    i dont know what your issue is , but often in the usa medicine is limited and doctors think they know it all.
    also they like to force surgery or over prescribe things to collect more money for the insurance companies ect
    i had treatment in france and they told me it was just slow moving from my hypothyroidism that was 6 years ago.


    i feel they listen better here in mexico to my issues and sometimes have other medicines not available in the usa.
    for example i had kidney-stones a few months ago and they gave me a pill which usually is for mens prostates in the usa (but the FDA wont certify it for use on kindey stones for some fucking reason)
    and i was able to pass the stone from those pills without ANY pain or even knowing i passed the stone.
    it saved me from having to have an operation. to remove the stone .
    if i was back in the usa they would have had to use a stint or i would have had so much pain to pass that stone.

    i had a recent flair up of colitis like symptoms in cancun
    and i recently went to a cuban doctor here for treatment (we have access to many cuban doctors)
    treatment here in very good if you find a specialist and very affordable. they will listen to you and help you in a way they cant in the usa.
    we have medicines and options that you dont have access to.

    my thyroid medicine has helped me a bit, my hair isnt falling out as much anymore and i am not as tired (i was sleeping 13 hours a day)
    but i still have symptoms of issues with my colon and swollen intestines.
    i am working with a specialist here.

    so i was advised to cut out all carbs and it has helped me so much. i eat very clean and that helped about 20%
    i also take some pills that are for faster emptying for when i need it. and they do work
    for the first time i have had my flat stomach back .

    also i have been able to go for lymphatic drainage massages and for my colon(since its so cheap here i can do it often)
    and help my body to get better and for stress.

    if you make good money camming you can for sure afford to get treatment in cancun, mexico city, or in france or cuba.

    its only $50 for the best specialists in france or mexico or less ...when i go and it includes ultrasound and all that
    and the pills i am taking i think were about $10
    without insurance.

    i dont know exactly what your symptoms are.. but
    you should look into other options.

    dont give up! pm me on here if you need someone to talk to or if there is anything i can do to help you.
    you arent alone. i am sure my issue isnt as bad as yours, but dont give up.. there are options.
    Yes! this is what I feel! I am considering going out of the country or in for out of pocket private medical care because I swear these doctors in the USA that take insurance DO NOT CARE!

    They have been watching me and my boyfriend suffer and literally have an attitude or do NOTHING!

    We ask for TESTS and do not get them! I live in Connecticut, born and raised, been hiking over 100 times, went to summer camps every summer all summer from age 6 to 14.

    I have been asking to be tested for lyme and other tick co infections and I STILL cannot even find a doctor that will run the tests!

    When I ask for tests for infections they act like I am crazy! I have brought studies and articles about infections that mimic crohn's and the fact that me and my partner are going through the same symptoms at the same time. They just look at me like I'm insane and will not run any tests and make excuses as to why they can't "just order a bunch of tests" for me!

    so you can do a colonoscopy and endoscopy and diagnose me with multiple diseases, but running blood tests to figure out what might be the issue is too much?

    it even says on my last biopsy report on the bottom

    "differential diagnosis is long standing infectious process"

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    Default Re: Does anyone else here have ulcerative colitis or crohn's disease? I'm so depresse

    Quote Originally Posted by illuminaughty View Post
    Yes! this is what I feel! I am considering going out of the country or in for out of pocket private medical care because I swear these doctors in the USA that take insurance DO NOT CARE!

    They have been watching me and my boyfriend suffer and literally have an attitude or do NOTHING!

    We ask for TESTS and do not get them! I live in Connecticut, born and raised, been hiking over 100 times, went to summer camps every summer all summer from age 6 to 14.

    I have been asking to be tested for lyme and other tick co infections and I STILL cannot even find a doctor that will run the tests!

    When I ask for tests for infections they act like I am crazy! I have brought studies and articles about infections that mimic crohn's and the fact that me and my partner are going through the same symptoms at the same time. They just look at me like I'm insane and will not run any tests and make excuses as to why they can't "just order a bunch of tests" for me!

    so you can do a colonoscopy and endoscopy and diagnose me with multiple diseases, but running blood tests to figure out what might be the issue is too much?

    it even says on my last biopsy report on the bottom

    "differential diagnosis is long standing infectious process"
    its all about money for them, the longer you are sick the more they can bill the insurance company.
    here in mexico i pay cash, i order the tests I WANT , i just walk in , order them myself without a doctor sometimes and get the results the same day.
    i do blood panels by myself just to check my levels.
    and if i have an issue i go to the doctor based on what i need.
    mediacal "care" in the usa is out of control
    im not saying its great here in mexico, because its wayyy better in europe.
    but.. you have no control in the usa over your own health and thats bull SHIT

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