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Thread: Fibromyalga?

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    Question Fibromyalga?

    Does anyone deal with/have this? I may have it. Thanks


    MANY MEN WANTED TO LAY ME DOWN, BUT FEW WANTED TO LIFT ME UP

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    Default Re: Fibromyalga?

    I've had it heavy in the past and get occasional flare-ups if I don't watch my diet. Here is a pretty good resource on the topic:

    http://www.prohealth.com/library/sho...cfm?libid=8287

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    Senior Member LittleBee's Avatar
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    Default Re: Fibromyalga?

    CBD oil, if you're not on any medications you can do the pure stuff if you are on a med you will need some with a low thc content otherwise it will render any meds that metabolize via the cyp450 enzyme useless. Most meds use this enzyme. I've been using cbd/thc for several days now because of seizures and fibro pain... 3 days no seizures, 3 days no pain.

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    Default Re: Fibromyalga?

    I have it! I think zoezoebella has a few threads about it. Do you have breast implants whirlez? I'm sure that I got it from my implants.

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    Default Re: Fibromyalga?

    I take medicatIon for it. You can PM me if you want.

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    God/dess whirlerz's Avatar
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    Default Re: Fibromyalga?

    Quote Originally Posted by Nyla19 View Post
    I have it! I think zoezoebella has a few threads about it. Do you have breast implants whirlez? I'm sure that I got it from my implants.
    No, I don't have implants. Although I know of someone (not well, & don't have a lotta info) who had implants, she got very sick from them. Idk if she got fibro or not, she was in the hospital for a time (not sure how long). I think she's doing better now, & had 'em removed.
    I did see that thread, but I thought it more pertained to ppl that had implants. Thanks!


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    Default Re: Fibromyalga?

    You're welcome!

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    Default Re: Fibromyalga?

    Daily exercise, a decent amount of sleep ,medication and some herbs could help. Glucosomine, chondroitin, turmeric, magnesium.

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    Default Re: Fibromyalga?

    I have had it for 11 years and it has been a very long process trying to get it under control and still changes need to be made constantly with my pain management care. I have danced with it and with out it, I have earned my four year degree with it and have worked at a few different office jobs full time for numerous years and can still occasionally dance. I have the best rheumotoligist in the state. If you are 98% sure you have it or have been diagnosed with it please contact me for help. I deal with dozens of people because they claim they have this disease but actually want attention and they have no knowledge of the intense impact that it can have on your life. I will gladly share any information with you if I can. I can try to check my PM but you can also email me at [email protected] with the subject "fibromyalgia" and hopefully I can answer some questions.

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    Default Re: Fibromyalga?

    Oh no, I'm so sorry whirlerz. I have experienced symptoms of it too. Pain all over my body, pain in my nerve endings, muscle weakness & pain, stiff neck, exhaustion, achy feelings, and extreme anxiety. But mine is not chronic, I only experience it when I go through one of my breakdowns or if I'm holed up in my apartment for too long, doing nothing. I can get the fibromyalgia under control by stretching, yoga, exercise, and smoking weed.

    I have done some research on fibromyalgia & know some people that suffer from it, and from what I gathered, it is caused by chronic anxiety that is stored in the body and manifests itself through physical pain. That anxiety will store itself in your body if you don't purge it through exercise. I have also noticed a pattern in people who have it tend to suffer from PTS as well. It is all related to anxiety, stress, and past trauma. But try to exercise, work up a sweat, or just do some light yoga/stretching and it should help. It will help dissipate and purge all that stress that is crippling your poor body.

    I hope you can get some relief babe.
    "Dancing tables, making deals with devils like a drunk beauty queen"

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    God/dess whirlerz's Avatar
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    Default Re: Fibromyalga?

    Quote Originally Posted by ScarletKitten View Post
    Oh no, I'm so sorry whirlerz. I have experienced symptoms of it too. Pain all over my body, pain in my nerve endings, muscle weakness & pain, stiff neck, exhaustion, achy feelings, and extreme anxiety. But mine is not chronic, I only experience it when I go through one of my breakdowns or if I'm holed up in my apartment for too long, doing nothing. I can get the fibromyalgia under control by stretching, yoga, exercise, and smoking weed.

    I have done some research on fibromyalgia & know some people that suffer from it, and from what I gathered, it is caused by chronic anxiety that is stored in the body and manifests itself through physical pain. That anxiety will store itself in your body if you don't purge it through exercise. I have also noticed a pattern in people who have it tend to suffer from PTS as well. It is all related to anxiety, stress, and past trauma. But try to exercise, work up a sweat, or just do some light yoga/stretching and it should help. It will help dissipate and purge all that stress that is crippling your poor body.

    I hope you can get some relief babe.
    Thanks, Scarlett! Yes, I've been reading about it too, above bolded I can relate to. Not entirely sure I have it, or if it's related to another issue I'm dealing with. I'd have to go to yet another Dr. just not ready to do that atm.
    I was doing yoga & kinda fell off frm doing it, thanks for the suggestions!


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    Default Re: Fibromyalga?

    I have it also! You're not alone <3

    I've been researching and saw that some doctors think it is linked to a low vitamin D count, so I recently starting taking 5,000IU a day as well as exercising and cooking for myself. I also saw that maca root powder is great for pain and fatigue, so i've been taking it every morning in a smoothie. that i can notice a difference with already (more energy).
    There will always be haters, might as well get paid

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    Default Re: Fibromyalga?

    I don't have fibro, but I have chronic illness and deal with chronic pain, as well as anxiety.

    If you ever need someone to talk to, I'm here for you!

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    Default Re: Fibromyalga?

    A friend of mine had it, she grew up on a Reservation so I assumed it was from being exposed to mold indoors and toxins from old building materials.

    I honestly would recommend to anyone suffering from chronic health issues to move to a hotter part of the States...getting through Snow Belt winters with chronic health issues just gets harder with time...That's why "snowbirds" retire to Florida and Arizona.

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    Default Re: Fibromyalga?

    I know this is easier to say than do but try to remove yourself from stress and toxic environments. Eat well, take lavender and Epsom salt baths, pamper yourself, surround yourself with supportive people. I've read many posts by you on here and you're such a kind and sweet spirit, you deserve health and happiness. I hope that wasn't a creepy thing to say btw! I truly mean it.

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    Thumbs up Re: Fibromyalga?

    Quote Originally Posted by HoolaTwister View Post
    I know this is easier to say than do but try to remove yourself from stress and toxic environments. Eat well, take lavender and Epsom salt baths, pamper yourself, surround yourself with supportive people. I've read many posts by you on here and you're such a kind and sweet spirit, you deserve health and happiness. I hope that wasn't a creepy thing to say btw! I truly mean it.
    Oh, no, you are Lovely for saying that!


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    Default Re: Fibromyalga?

    My pain was so bad, I either had to do a narcotic pain killer or a non narcotic pk. I went with a non narcotic pk.Lately, its been working which is great! Good luck Whirlez! I hope you don't have it. Although, it might be better to have Fibromyalgia instead of RA or Lupus.

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    Default Re: Fibromyalga?

    My girlfriend has had Fibro for years. At times she's pretty ok, but at others (especially the past six months or so) she's in constant pain.

    She been on various medications, supplements, and whatever else, but for her, the ONE thing that has made the most difference is, unfortunately the one thing that chronic pain and exhaustion makes the most difficult. Exercise, specifically cardiovascular.

    The more she can run and bike, the better she feels. The less exercise, the worse pain, and the harder it is to get out and exercise.

    I have witnessed second hand just how terrible and life-changing Fibro can be. You have my full sympathy and best wishes for luck!

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    Default Re: Fibromyalga?

    I was convinced I had fibro (my mom has it, which really increases my risks), but it turned out I was really suffering from severe malnutrition (my vitamin D was so low it wouldn't register on their test). I thought I was dying some times, oh it was horrid. So, I just wanted to ut this out there: make sure to have your vitamin & mineral levels checked. The first doctor (a dude, of course it was a dude, fresh out of school too, so holy hell what a god complex!)I saw about my poor health insisted that because I am a female with children I must be depressed, gave me a prescription for anti-depressants and wouldn't hear anything else I had to say. The next person ( a nurse practitioner, love that woman) was willing to explore chronic conditions but wanted to rule basic stuff out first. I think that saved my life. My anxiety is at a manageable level, finally.

    I really hope you find answers, and better yet, solutions! Its a long, scary as fuck, exhausting road .

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    Default Re: Fibromyalga?

    Thank you both, Hippy & Charley & welcome to the Forum!


    MANY MEN WANTED TO LAY ME DOWN, BUT FEW WANTED TO LIFT ME UP

    -Eartha Kitt

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    Default Re: Fibromyalga?

    Thanks for the welcome!

    I hope you don't have fibro, but if you do end up having it, I hope you figure out what works for you, and early on.

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    Default Re: Fibromyalga?

    My friend has it and swears by a gluten free diet. Also gluten intolerance can mimic fibro. When I was eating gluten I was in agony. It's worth getting the tests done.

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    Default Re: Fibromyalga?

    I have fibromyalgia. If you think that you have it, this is something you absolutely should see your doctor about. In order to get diagnosed with it, they will run a bunch of tests to first rule out other possibilities first. It's important to do this because it rules out the possibility of it being a more serious condition (that would need to be treated differently). Also, there is the possibility that it is something else that can cleared up with a little effort. Also, it's quite frequently co-morbid with depression (which can also hurt). Depression is something you will also want to watch out for (and work to manage if you have it as well).

    The shitty thing about fibromyalgia is that no one has a clear idea of what causes it, although there are some theories floating around as well as some promising research. It isn't so much a disease as it is an unexplained syndrome. When looking for help, you might find that some doctors will put the burden of proof when it comes to your pain on your shoulders when the lab work comes back clear. If that's the case and you have the option to see different doctors, find one that is willing to work with you when it comes to finding ways to manage it.

    I have had it for a few years. I have been on a variety of different medications over the years, tried many different things. There are three things I have found to help. First, is cardiovascular exercise. I feel better when I can run, bike, swim. When I don't keep on top of being active, I'll hurt more and then it will become harder to keep exercising or harder to start again. There is even a bit of research that supports that this is a helpful means of managing chronic pain. Be gentle with yourself though, you don't have to be as fast, strong and as enduring as you used to be. But getting your heart rate up a little on a regular basis ought to help. The second thing is getting adequate sleep. Poor sleep will makes things hurt even more. If you don't already, practice good sleep hygiene, lay off caffeine and alcohol before bed, take some melatonin or valarian root if you are having trouble sleeping (hot water bottles and electric blankets also do wonders for relaxation). Weed does wonders for really painful days.

    Also, as others have mentioned, social support is important, as is stress management. You have less energy to deal with stress, so you may as well cut as much stress out of your life so you can use what sparse energy you have on enjoyable things. Look up "Spoon Theory", it's very applicable to fibromyalgia. And if you want some online social support of people who get the struggle of chronic pain. Reddit has an active forum on fibromyalgia and tumblr has a lot of active blogs on it as well.

    I wish you luck in learning how to mange it.

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    Default Re: Fibromyalga?

    Quote Originally Posted by SnuffleUffleGrass View Post
    A friend of mine had it, she grew up on a Reservation so I assumed it was from being exposed to mold indoors and toxins from old building materials.

    I honestly would recommend to anyone suffering from chronic health issues to move to a hotter part of the States...getting through Snow Belt winters with chronic health issues just gets harder with time...That's why "snowbirds" retire to Florida and Arizona.
    Actually , I live in florida and have been sick from my implants for 6 years. My symtoms mimic every auto immune disorder under the sun and heat makes me feel a million times worse. Also almost every home here has mold from the himidity. I actually felt the best when I traveled to Denver and cool places. Montel Wliiams has M.S. and has said the same thing about Denver.

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