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Thread: Ovarian Cancer

  1. #1
    Featured Member southstbabe's Avatar
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    Sad Ovarian Cancer

    My Mon, who is 79, 80 in August, has been fighting ovarian cancer for 2 1/2 years now and she's put up one hell of a fight. But back in April she started to decline rapidly. She's in the hospital now with perhaps maybe 2 months left. I cry every day. I worry about getting my 8 year old son through this because he's very close to his "Grammy". It's so hard watching her fade, seeing the sparkle in her beautiful blue eyes getting dim. I'm so scared. I have 3 older sisters who are 16, 13 and 11 years older than me. They always had eachother, all I had was my Mom. Don't get me wrong, I'm close to my sisters, now, But when I was growing up they were already out of the house starting their own lives. Back when my mother was first diagonsed (sp) I realized that she might not make my sons first holy communion, so I started to pray. I prayed to God to let her make it to my sons communion and then he could take her. Well, right after my sons communion on April 9th she started to slip. I guess God heard me. My father isn't much better off, he has lung cancer and he's home alone while she's in the hospital. They've been married 58 years and she's done everything for him. For christ sake, she even would lay out his clothes for him. I don't know whats going to become of him when she's gone. My gut tells me he'll prolly follow close behind her. I just wish someone would come along and put their arms around me, hold me and tell me everything is going to be alright.

    Take care of your ovaries ladies. We didn't catch my moms cancer until it was too late. She was already stage 4. I've learned that ovarian cancer whispers, so you have to really listen. My mom notice that her tummy was getting a little bigger. So like all of us women, she started watching her weight. She never complained about any other symptoms but my mom is very stoic (sp) and before we knew it she looked like a pregnant 77 year old! What I've started doing (since my risk for ovarian cancer is much greater now) on my OB/GYN recommendation along with my annual exams with with her is to get a pelvic ultra sound 6 months after my exam with her. This is so an entire year won't go by befor something is picked up. So every 6 months I've got someone checking my ovaires one way or another. I also have my CA-125 checked.

    Thanks for letting me cry on your shoulders. One thing I've noticed about this site is that everyone is so supportive of eachother, posting this thread was theraputic in a way.

    Remember - take care of your selves. Our health is in our hands and we have to be proactive about it.

  2. #2
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    Default Re: Ovarian Cancer

    Im sorry babe...going through cancer with anyone yourself included is like going through hell. Having to watch someone suffer and you cant make them better is being more helpless than a newborn.

    You remind me that I need to get checked up again. Last time I didnt go b/c I was scared to what I might find out and this was a few months ago.

    My prayers are with your mom.
    you live like an ivy vine
    you can only survive by clinging onto trees
    that's your flaw
    put down some roots so you can stand on your own
    -Kenpachi



  3. #3
    God/dess PaigeDWinter's Avatar
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    Default Re: Ovarian Cancer

    Though I have had no experience with Ovarian Cancer, I lost my mother to Lung Cancer when I was 8, and her mother to the very same when I was 13. I did a little research when I was old enough to know what to research, and found out that in the past 4 generations behind mine, Lung Cancer has taken every single woman on my mother's side except for one, who was consumed by tumors so... I've become extra careful about getting tested. But, yes, girls need to keep an eye on their ovaries so much! I have a friend doing battle with that right now and it's so hard for her.

    southstbabe, if you ever need a virtual hug or to talk, let me know ok?
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  4. #4
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    I lost my mother to ovarian cancer in 1992, so I know exactly what you're going through.

    Ovarian cancer doesnt have a celebrity to carry the torch for fundraising and research, the way testicular cancer does with Lance Armstrong, and breast cancer gets much more public exposure.

    Famous people with ovarian cancer include:
    Angie Bautista, wife of Pro Wrestler Batista (currently in third year of remission);
    Dixie Lee, wife of Bing Crosby;
    Robert Eads, transgendered actor and subject of the 1991 film "Southern Comfort";
    Gilda Radner, wife of Gene Wilder (Wilder went on to found "Gilda's Club" a support group to raise awareness of the disease);
    Laurie Beechman (longest-running Grizabella in Broadway's longest-running hit, "Cats);
    Maria Figueiredo, mother of Aura Figueiredo;
    Madeline Kahn (following her death, her friend, Phylicia Rashad, began a campaign to find a cure for the disease);
    Bess Myerson (Miss America 1945) a living survivor;
    Dinah Shore;
    Keri Starr (porn star. also surviving cervical and uterine cancer);
    Loretta Young.

    Gilda's Club
    http://www.gildasclub.org/
    has expanded its focus to include everyone living with cancer, in the same way the Lance Armstrong Foundation has. However, it has much less publicity.

    Here is a link for you
    http://www.ovarian-news.org/
    it will provide some information and, hopefully, comfort.

  5. #5
    Featured Member southstbabe's Avatar
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    Default Re: Ovarian Cancer

    Thanks so much for the support. I found out this morning from my sister that they're (doctors) talking about sending my mom home soon since there is not much more that they can for her at the hospital. So I guess we'll be setting things up with Hospic (sp) soon. My other sister is coming up from FL on Thursday and staying for a week at my parents house. That will give me and my other sisters a break and time to set things up with Hospic. Thanks for the links DJ_Duane, I'll be exploring them today. Paige, thanks for the hug and I just might take you up on that offer to talk one day.

  6. #6
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    southstbabe,

    Before I left home to go to the Paradise Ride, I sent an email to OvarianCycle
    http://www.ovariancycle.org/
    which is raising money for the Ovarian Cancer Research Fund and Ovarian Cancer Institute.

    They have an event in Georgia which is not a real bicycling event. Its indoor cycling on stationary bikes, so they are riding "virtual miles". Not being able to travel to Georgia and not being into riding on stationary bikes, I asked them if I could sign-up for the event and raise donations for them here in Hawaii while riding in local bicycling events. We have two big events before the closing of Ovarian Cycle's fundraising deadline: the Honolulu Century Ride and the Haleiwa Metric Century.

    While I was away, they wrote me back and said they appreciated my offer and, if the Board of Directors approves it, I can setup a donation page with them and raise money to support reasearch towards finding a cure for ovarian cancer.

    I'm not a very good fundraiser, but every little bit of effort helps and I've always wanted to do something toward helping fight ovarian cancer as my own mother died thirteen years ago to the disease.

    If they give me the okay, I'll let you know and maybe we can get others to signup in their own communities around the country and help save women around the USA and Canada from ovarian cancer and save their families from the loss of a mother, grandmother or sister.

  7. #7
    God/dess Casual Observer's Avatar
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    Default Re: Ovarian Cancer

    I found out this morning from my sister that they're (doctors) talking about sending my mom home soon since there is not much more that they can for her at the hospital. So I guess we'll be setting things up with Hospic (sp) soon.
    Hospice is much, much more humane than letting someone who is terminal slowly die in a hospital. You'll be glad you went that route.

    Best wishes.
    Idealism is fine, but as it approaches reality, the costs become prohibitive.

    William F. Buckley, Jr.

  8. #8
    Banned Katrine's Avatar
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    Default Re: Ovarian Cancer

    Sorry for your situation southsidebabe, and thanks for sharing with us.

    I had pain and bloating for about 3 months, and no doctor would do an internal ultrasound on me at all, they blew me off because of my age I guess. Finally I had to go to a specialist who did the internal ovarian ultrasound. He gasped, convinced I had late stage ovarian cancer.

    I had emergency surgery, and luckily, there was no cancer. But the ultrasound was the only way to even be able to determind what the next step can be. The doctor cannot feel it from a standard pelvic.

    So next time you do your annual, insist on an internal ultrasound!!!

    Best wishes, you and your family will be in our thoughts and prayers.

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    Senior Member poriland4's Avatar
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    Default Re: Ovarian Cancer

    breastfeeding they say reduces the incidence of ovarian and breast cancer
    It's TOO BAD SHE'LL won't LAST, BUT then again WHO DOES!?

  10. #10
    Pamela
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    Default Re: Ovarian Cancer

    I will say my prayers for all to be strong.

    I also read Gilda Radners (sp) book way back. Gosh....I hope they find a cure.

    Pamela

  11. #11
    God/dess Farrah_Holiday's Avatar
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    Default Re: Ovarian Cancer

    Best wishes to you and your family.

    Farrah
    My new love...is me !

    Even the greatest authority does not, ultimately, know you as you know yourself.
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  12. #12
    God/dess VenusGoddess's Avatar
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    Default Re: Ovarian Cancer

    Oh, it's going to be a hard ride...take care of yourself. Take care of your little one...

    My heart and prayers go out to you.

  13. #13
    Featured Member southstbabe's Avatar
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    Default Re: Ovarian Cancer

    Thanks everyone. Mom is hangin in there and hospice is offically signed on. She can get around, just a little wobbley(sp) kinda like a toddler. When you start a conversation with her, she'll talk your ear off. We did have to go from Tylenol to Percocet for the pain recently and the heavy duty stuff is on stand by. Now my father is an issue, he has lung cancer, colon cancer, and a list of other things that is contantly rewriting the family medical history. I think not only is Dad's problem physical but mental too. They've been together 58 years, she's done everything for him and as far as we can see, he's always expected to die first, and now he's seeing that might not be the case. He sleeps all the time, we can hardly get him out of bed, barely eats and we have to fight him to get him in the shower. He hardly speaks to my mother or any of us, just kinda stares at her. I think he's given up his will to live watching my mother die. My hubby and I and our son are suppose to go on vacation next week to NC (we live in NJ BTW) and I'm worried about leaving but I don't want to cheat my son out of his summer family vacation. My sisters have assured me that if there is any change at all they'll call us. It's a tem hour ride and I know my husband could do it in 7 or 8 in an emergency. I don't know what to do. I do know that when one goes, the other won't be too far behind. I remind myself all the time that everyday is a gift and thank the Lord for it. I'm doing my best to keep up the brave and strong front all the while wearing a smile for the sake of my son and my sisters and parents and it aint easy. I cry eveyday morning in the shower and sometimes sneak down stairs in the middle of the night to cry. Some days I just want it to be over and other days I'm still holding out for a miracle. Thanks again for all your love and support, it really does mean a lot.

    Kisses

  14. #14
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    OvarianCycle gave me the okay and I will be given a fundraising page when registrations open in September 2005.

    I've met numerous people who have loved ones with Ovarian Cancer. I've been hearing about women as young as 13 years old getting it, so its not restricted to older women as I had thought it was.

    The sad fact is, there is no test to look for Ovarian Cancer in the early stages that does not involve doing a biopsy. Add that to the fact that Ovarian Cancer has to struggle to get into the public spotlight and you have serious issues over getting enough money for research. Plus, ovarian cancer is competing with other forms of cancer (e.g. breast, lung, etc) as well as other diseases (e.g. diabetes, MS, Muscular Dystrophy, AIDS, etc) for money and attention due to lack of information and - as I said previously - lack of celebrity endorsement.

    I know I said I felt overloaded with fundraising work. But ovarian cancer killed my mother and that makes this one a very personal issue for me.

    I'm gearing-up for the start of fundraising work, remembering all lessons of my past failures, and getting ready to start with earnest this September.

  15. #15
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    Default Re: Ovarian Cancer

    Hope everything turns up fine for your mom and you



  16. #16
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    When I first began telling people about my intentions to ride for OvarianCycle, I was unaware of how many people have had some one in their lives who had ovarian cancer.

    After less than a month, it seems that nearly everyone I've mentioned it to has, at least, one family member who either has it or has died from it. Everything from mothers to sisters to ex-girlfriends.

    With over sixteen thousand woman dying every year from ovarian cancer, you'd think that it would have more publicity. Fundraising events for it exist, but not on the scope I might have expected.

    I admit that I am seeing this purely through the eyes of some one whose own mother died from it, but thirteen years have gone by since my mom died and they still don't have a uniformly reliable test to detect ovarian cancer in the early stages.

    When my mom was alive, she took every test to find whatever gyno-cancer you could think of: mammographies, pap smears, etc.

    The only test she didnt take, was the one for ovarian cancer. The reason she didnt was because such a test did not exist at the time. And that's the cancer that killed her.

    OvarianCycle's registrations open-up in September. Between now and then, I'm getting the word out to the local cycling community and build a team to ride for them.

    At the same time, I'll be contacting cyclists from around the USA to get more people signed-up to ride for OvarianCycle in their own communities. Even though OvarianCycle only has one event in May and its indoor cycling, with cyclists around the country riding in local events, more money and publicity for ovarian cancer research hopefully will come in.

    If all goes as planned, in less than two months I wont just have a team riding for OvarianCycle. I'll have an army.

  17. #17
    God/dess Polekitten's Avatar
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    Default Re: Ovarian Cancer

    Im sayin a wee prayer for you honey. Be strong, all our thoughts are with you,
    xx



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  18. #18
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    I was asked by a friend if OvarianCycle would accept money from the Adult Industry.

    After asking (with few results) people in the Adult Industry for support for my efforts on behalf of the Leukemia & Lymphoma Society, I wasnt hopeful for serious donations from people and companies in the business.

    But, the question had been put to me and I was a little curious. So, I sent an email to OvarianCycle's founder, Bethany Diamond, and asked her if Adult Industry donations would be acceptable. Personally, I expected a negative reply.

    Within the hour, Bethany wrote back.

    Her response was: since Ovarian Cancer doesnt discriminate against which women it will affect, neither will OvarianCycle discriminate against where they take their donations from. Whether the money comes from a strip club, adult video company, etc. all donations would be welcome and put towards developing early detection tests, treatments and an eventual cure for ovarian cancer.

    Maybe I'll try the Industry again for donations after the registrations open for OvarianCycle later this month.

  19. #19
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    It's official, I have become the very first person to sign-up for Ovarian Cycle 2006!

    Donations will benefit the Ovarian Cancer Insitute and the Ovarian Cancer Research Fund, Inc in their work to develop reliable and easy to administer early detection tests for ovarian cancer.

    Here is my donation page link.

    No donation is too small, or too large.

  20. #20
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    Ovarian Cancer Rate Not Declining, USA
    08 Oct 2005
    http://www.medicalnewstoday.com/medi...?newsid=31740#

    The National Cancer Institute released a report this week stating that “Americans' risk of dying from cancer continues to decline…” This does not apply to ovarian cancer, the fourth leading cause of cancer death among women in the United States reports the Ovarian Cancer National Alliance.

    “Women's risk of being diagnosed and dying from ovarian cancer is no less today than it was last year or ten years ago,” said Sherry Salway Black, Executive Director of the Ovarian Cancer National Alliance. “Women must not be lulled into a false sense of security when it comes to this deadliest of gynecologic cancers,” she added.

    All females are at risk for ovarian cancer and it occurs in 1 out of 57 women. It is expected that more than 22,000 women will be diagnosed with the disease in 2005 and an estimated 16,000 women will die from ovarian cancer in 2005. American Indians and Alaska Native women show both a higher ovarian cancer incidence and mortality rate than white American women according to statistics developed by the National Cancer Institute's Surveillance, Epidemiology and End Results Program, but not included in NCI's Report to the Nation.

    “Research on ovarian cancer is drastically under-funded in relationship to its high death rate,” Executive Director Black said. “Until there is an effective way to screen and test for the presence of this dreaded disease, we should be increasing research dollars, not decreasing them,” Ms. Black added. “We urge Congress and the Administration to help fund research so a test can be found and women can be diagnosed early and increase their chances to survive this killer cancer.”

    Funding for ovarian cancer research decreased from fiscal year 2003 to fiscal year 2004 by $7 million. Other than a $1 million decrease for prostate cancer, no other cancer received a decrease in the same time period.

    “National Cancer Institute statistics clearly show that the ovarian cancer incidence and mortality rates have been a virtual flat line from 1975 to 2001,” said Ms. Black. “We want to see in NCI's next report to the nation, a real downturn in the mortality figures and that will only come if we find a test for early detection.”

    910 - 17th Street, N.W.
    Suite 413
    Washington
    DC 20006
    Telephone: 202-331-1332
    FAX: 202-331-2292
    http://www.ovariancancer.org

  21. #21
    Senior Member FL Dancer's Avatar
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    Default Re: Ovarian Cancer

    Quote Originally Posted by DJ_Duane
    I sent an email to OvarianCycle's founder, Bethany Diamond, and asked her if Adult Industry donations would be acceptable. Personally, I expected a negative reply.

    Within the hour, Bethany wrote back.

    Her response was: since Ovarian Cancer doesnt discriminate against which women it will affect, neither will OvarianCycle discriminate against where they take their donations from. Whether the money comes from a strip club, adult video company, etc. all donations would be welcome and put towards developing early detection tests, treatments and an eventual cure for ovarian cancer.
    AWESOME answer. It is really too bad and very sad that so many other charity and/or research groups refuse donations from the adult industry.

  22. #22
    Veteran Member DJ_Duane's Avatar
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    Default Re: Ovarian Cancer

    http://www.thestate.com/mld/centreda...redaily_living
    Posted on Mon, Jan. 16, 2006
    Health Break

    Early detection is key to overcoming ovarian cancer
    By Andrea Yevchak

    While ovarian cancer is not as common as breast cancer -- affecting 1 in 57 women compared to 1 in 7, according to Johns Hopkins -- it is considered more deadly because of a higher percentage of terminal cases.
    According to the American Cancer Society, ovarian cancer accounts for only 3 percent of all cancers among women, yet ranks fourth as a cause of their deaths from cancer. The society's statistics for ovarian cancer estimate that there are about 22,220 new cases, and 16,210 deaths, each year.
    Ovarian cancer is treatable when caught in its early stages, but as a "silent killer," its symptoms are vague and may be confused with other diseases, or may even go undetected until its later stages.
    Almost 70 percent of women with the common epithelial ovarian cancer are not diagnosed until the disease is advanced in stage and has spread to the upper abdomen or beyond, according to the National Ovarian Cancer Coalition. The five-year survival rate for women in these later stages is only 15 percent to 20 percent, whereas the five-year survival rate for stage-I disease patients approaches 90 percent, and for stage-II disease patients approaches 70 percent, the coalition reports.
    Diagnosis of ovarian cancer is based on symptoms and confirmation by ultrasound, MRI, CT scan, blood tests and cell biopsy. It is currently being treated with chemotherapy, radiation and or surgery, based on the stage and type of tumor.
    Symptoms of the disease include a fullness or pressure in the abdominal or pelvic area, vague stomach pain or acid reflux, and abnormal vaginal bleeding. Unlike breast cancer, a routine monthly screening cannot be conducted at home due to the location of the ovaries. There are also no routine screening options, such as mammography.
    Although symptoms can be vague, there are many factors that have been proven to contribute to a woman's risk of ovarian cancer, including:
    increasing age
    obesity
    having had breast cancer
    genetics
    family history of ovarian cancer
    having certain types of colon cancer
    smoking
    use of fertility drugs under certain circumstances.
    In addition to these, other aspects have been linked to an increased risk of ovarian cancer, such as the use of talcum powder in the vaginal area, hormone replacement therapy in postmenopausal women and certain types of complex ovarian cysts in women age 50 and older.
    Research also is being conducted on whether the age of the onset of menstruation and menopause is a risk factor. Some experts say that this is not a factor, but others strongly believe that it is linked to ovarian cancer.
    On the other hand, having at least one child, breast-feeding, using birth-control pills and tubal ligation or having a hysterectomy have been shown to decrease women's chances of having ovarian cancer.
    Current research also is being conducted on the effect aspirin might have on ovarian cancer due to bleeding risks and stomach irritation some women have experienced and associated with aspirin use. Some medical professionals warn against taking the drug until more studies can be conducted.
    Screening tools for the disease are currently being developed, but some physicians are using ultrasound to detect early stage tumors in high-risk patients. A tumor marker, CA-125, is being used as a diagnostic tool, but it is being researched as a screening marker, similar to BRCA-1 and BRCA-2, which are screening markers for breast cancer.
    January has been designated Ovarian Cancer Awareness Month. As women make their New Year's resolutions, they should remember to include a resolution to visit their physicians and gynecologists for routine physicals, which provide the best method of early detection of ovarian cancer.

    --------------------------------------------------------------------------------
    Andrea Yevchak is a registered nurse on the Medical/Surgical and Orthopaedics Unit at Mount Nittany Medical Center.

  23. #23
    Veteran Member susie's Avatar
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    Default Re: Ovarian Cancer

    I'm sorry for your pain, and the trial you are going through now.
    I watched/helped my father go through a sickness, and I have to say that their are things I wish would have been done differently.
    1) record any storys that they want passed on from their life
    2) give hugs, lots and lots of hugs
    3) be honest with every one in her life-including older children- about what is going on
    4) Help her prepair, and help her say good bye.
    5) Anger is a part of greaving, when you are faced with greaving before a person is gone, you will have anger. If you are feeling angry, either express it to your mom in a positive way, or leave so they don't see the anger.
    6) read to her. any book. you will cherish the memory, and she will appreciate being able to hear your voice with out necisairily listening.
    7) keep a journal, record all the stupid details of your visits/time with her.
    Anyways, take care of yourself, eat, shower, and cherish your moments.
    Lots of hugs for you,
    XOXO
    Susie

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