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Thread: Misdiagnosis?!?

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    Default Misdiagnosis?!?

    As most of you know, a couple months ago or so my Sister was diagnosed with skin cancer. She was put on medications that made her sick every single day. The other day, out of the blue, she decided to get a second opinion because she was just exhausted.

    She called me a little while ago---NO Cancer! Not a trace of it.

    So in other words, this fucking quack that she first went to, diagnosed her with stage 2 (or stage 3, he never did say) cancer and was putting her through unnecessary treatment and medications.

    I know, I should be happy that it isn't cancer, but I'm fucking livid.

    What effects will these meds have on her body now, seeing that she doesn't need them? What steps can she take to bring a malpractice suit against this fucking quack? He needs to have his license revoked so that he can't practice anywhere ever again. She's been put through unnecessary emotional torment as well as those around her.

    I'm going to get his name from her and I'm going to do my own research on this fucking idiot. Is he driven by money? What reason could someone have to give someone that kind of diagnosis when it is clearly not so?

    Anyone have any advice, or things to guide me in the right direction, so I can pass it on to her, I would really appreciate it. I'm out for fucking blood at this point.

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    Veteran Member HoneyHITZ's Avatar
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    Default Re: Misdiagnosis?!?

    I have no idea what she can do, but im very very very happy that she does not have cancer! i found out on friday that my grandmother has breast cancer and everyone in the family knew since february and no one bothered to call me... but i am SOOOOO happy she doesnt have cancer! And dont worry she'll get a lot of money out of this idiot, cuz thats just wrong... good luck babe! *hugs*


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    * Rhiannon_SW gasps.

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    Default Re: Misdiagnosis?!?

    Thanks Honey.. I am very happy that she doesn't have Cancer, that's one good thing that's come out of this.

    But for the passed 2 months, she's been thinking that she was going to die and leave her daughter behind. She had even went so far as to ask me if I would take Livvy *when* she passed away. She's been literally going through hell. The medicines have made her sick, dizzy, and tired every single day, and the emotional stress on top of it all has been absolutely horrendous for her.

    I want to nail this doctor's ass to the wall.

    It's not so much for money (although it would be alright with her, I'm sure), but she wants his license gone. I wonder how many other people he's done this to? It's so wrong on so many levels.

    I'm sorry about your Grandmother. I'm here if you ever need to talk. ((Hugs))

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    Default Re: Misdiagnosis?!?

    perhaps the two months of medications put the cancer in remission?

    if she's been on drugs for that long, it would be really hard to prove she never had cancer, wouldnt it? i dontknow.. playing devil's advocate.

    Let this be a lesson to everyone - always get a second opinion!!! especially when it's something so serious

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    Default Re: Misdiagnosis?!?

    Well, unless they were some really potent drugs, I'm not sure they could send that type of cancer into remission and leave absolutely no traces of it in just 2 months time.

    Another interesting tidbit I just learned from my Sister... The second doctor contacted the first doctor's office. Strangely, that office said they had absolutely no record of my Sister being treated as a patient there--no file or anything. This is definitely not normal.

    So, action will most certainly be taken.

    I've advised Heidi to get a THIRD opinion, just to be safe. But in the meantime, we're brainstorming on what to do next.

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    Default Re: Misdiagnosis?!?

    Quote Originally Posted by Rhiannon
    I've advised Heidi to get a THIRD opinion, just to be safe. But in the meantime, we're brainstorming on what to do next.
    From this point on,anything and everything you do and say could cost you a case.

    Dont do anything else,dont let anyone call the doctor,dont tip him off to your hand.

    Go get the biggest,most powerful lawyer in your area.
    Even the ones that dont like to admit chasin ambulances would cream thier pants for something like this.

    My advice,dont do anything else,go directly to a lawyer.

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    Default Re: Misdiagnosis?!?

    So she shouldn't get another opinion? I just want her to make certain that she is cancer-free. I don't want her health to suffer because of a lawsuit.

    She didn't have the new doctor call, he did that on his own because he wanted her medical records so he would have some history. She had nothing to do with that.

    Why should she not get another opinion? Her health is priority here. This guy fucked with that health of course, and he should pay for it, but I want to make sure she's alright.

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    Default Re: Misdiagnosis?!?

    noooooooooooooo

    what im talking about is seperate from the medical attention she should be looking for.
    I would get a couple of second opinions.

    She needs a doc and a lawyer,all at the same time,Now.

    Gosh its good news,bittersweet,but who cares!!!

    Im happy for you Rhi.

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    Default Re: Misdiagnosis?!?

    Thanks for clarifying Hon.. And thanks, I'm happy as well. I just want to be sure, it almost seems too good to be true.

    I'll make sure she keeps things quiet and gets a good lawyer. It sucks because I'm here, and she's there (CT). And it just sickens me that a DOCTOR would diagnose her with something so horrible. I have no idea what his motives would be. Someone suggested to me that a possible motive would be to get more money from her insurance (State-provided), so I really think that could be it. But again, I don't know since I'm not there.

    It's just weird about her medical records. How could they just up and disappear like she never was a patient? It's wrong on so many levels.

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    Default Re: Misdiagnosis?!?

    PHEW! she doesnt have cancer.

    Yes shes needs a super lawyer...he needs to go down. Cancer meds cost alot along with everything else.....gosh all her time and energy that has been taken from her. Grrrrrr. I hate doctors jeebus get it right ...they dont make 100K a year for some misdiagnosis crap.

    He doesnt deserve to practice medicine anymore......go get his ass and set it on fire.
    you live like an ivy vine
    you can only survive by clinging onto trees
    that's your flaw
    put down some roots so you can stand on your own
    -Kenpachi



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    Default Re: Misdiagnosis?!?

    Rhia-

    I'm happy to learn your sister does not have cancer.

    You need to inform your sister she needs to get an attorney.. depending on the medications she was taking, they could have some long term effects on her system, could even cause some other things.. its a malpractice case.. and they happen quite frequently.. however, it surprises me that she didn't obtain a second opinion before she went on any type of treatment, but depending on what medications he placed her on, most of the cancer treatment drugs are (and I apologize in advance here) poisionus because think of how strong something has to be to kill off cancer? Malpractice written all over this. Find an attorney that will take a pro-rata share of her settlement. File a complaint with the Medical Board and Board of Physicians in your area as well.

    Good luck.


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    Default Re: Misdiagnosis?!?

    Wow. What a weird story. If the doc told her the staging of the cancer, he had to have cut it out and then had it looked at under the microscope. You can ask your sister if he did an excisional biopsy. If he did, then most likely he removed the entire skin cancer along with some good borders. In that case, there would of course not be any sign of remaining cancer. The first line of treatment of skin cancer is generally cutting it out or using a topical cream.

    I'm not a dermatologist, but I'm racking my brain and cannot think of any type of skin cancer that is cured by an oral medication. I'm baffled by the pills. Do you know what was prescribed? Topical creams for skin cancer...... very common. Chemotherapy for cancer that has spread..... it is used often. Surgical excision is, as mentioned, the norm. But an oral medication as a cure? VERY VERY strange.

    And then for the doc to not have a chart? That is the kicker. If there was no small, in-office procedure to cut out the cancer, and the doctor was trying to cure her supposed skin cancer using pills, track down the labels and the prescriptions. Find out what the medication was.... what the med was for..... and what the treatment plan was. If you have good reason to do so, file a case against the doc. If he can't provide a chart and you have a valid claim, his ass is toast.

    If in the meantime you want to run anything by a M.D. such as the name of the oral medications and stuff like that, please feel free to PM me. Hope that helps.

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    Default Re: Misdiagnosis?!?

    Quote Originally Posted by Adrenaline
    Wow. What a weird story. If the doc told her the staging of the cancer, he had to have cut it out and then had it looked at under the microscope. You can ask your sister if he did an excisional biopsy. If he did, then most likely he removed the entire skin cancer along with some good borders. In that case, there would of course not be any sign of remaining cancer. The first line of treatment of skin cancer is generally cutting it out or using a topical cream.

    I'm not a dermatologist, but I'm racking my brain and cannot think of any type of skin cancer that is cured by an oral medication. I'm baffled by the pills. Do you know what was prescribed? Topical creams for skin cancer...... very common. Chemotherapy for cancer that has spread..... it is used often. Surgical excision is, as mentioned, the norm. But an oral medication as a cure? VERY VERY strange.

    And then for the doc to not have a chart? That is the kicker. If there was no small, in-office procedure to cut out the cancer, and the doctor was trying to cure her supposed skin cancer using pills, track down the labels and the prescriptions. Find out what the medication was.... what the med was for..... and what the treatment plan was. If you have good reason to do so, file a case against the doc. If he can't provide a chart and you have a valid claim, his ass is toast.

    If in the meantime you want to run anything by a M.D. such as the name of the oral medications and stuff like that, please feel free to PM me. Hope that helps.
    K.. Just to clarify. The original doctor diagnosed my sister with Metastatic Malignant Melanoma (Stage 2 or 3, he never did say). She was told that the medication given (and I still have to get the name of it from her) would stop the growth and spreading so that they could proceed with further treatment to rid her body of the cancer. It was in no way stated that it would get rid of the cancer. She had some of the cancerous moles removed and biopsied, not all of them. It was already said that there was some spreading that might have gone into the lymph nodes, but it would require even more testing.

    Being that she was exhausted mentally and physically from the medication and treatments already given, she sought a second opinion. In the beginning with the initial diagnosis she felt she didn't need to question it because we do have a very close history of skin cancer, losing our father to it. I guess she just finally got fed-up with feeling tired and sick that she wanted to make sure she had what she was diagnosed with. She said she just out-of-the-blue called up another oncologist and made an appointment. That second doctor found nothing--absolutely nothing.

    Given the amount of spreading and growth that she supposedly had, it's pretty much impossible that any kind of medication would just make it "poof" disappear. Skin Cancer is notorious for sticking around and spreading even with treatment.

    Adrenaline, that's the thing I'm having the most trouble with---his lack of file for her. Surely he didn't treat her without having one, so where did it go? It makes no sense. She has invoices and things like that from his office and her outpatient visits, so I told her to make sure she hangs onto EVERYTHING. It's just really disturbing. This whole thing is disturbing. The medications she was prescribed were both in pill form. I'm going to call her in a few and get the names so I can do some research. I'm concerned for her, very much. I'm not sure of the type of biopsies that were performed. I'll find that out as well, if she knows.

    Gynger, I'm also worried about the effects of the medication. I can't for the life of me understand why someone would prescribe a patient medication that they didn't need, for a disease they don't have. This whole thing just doesn't make sense. I just hope with everything I have that she's alright health-wise.

    I'll update you all in a few after I talk with her..

    Thank you all for your suggestions and thoughts--please keep them coming. I have no idea how to go about all this, and neither does she.

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    Default Re: Misdiagnosis?!?

    Quote Originally Posted by Rhiannon
    K.. Just to clarify. The original doctor diagnosed my sister with Metastatic Malignant Melanoma (Stage 2 or 3, he never did say). She was told that the medication given (and I still have to get the name of it from her) would stop the growth and spreading so that they could proceed with further treatment to rid her body of the cancer. It was in no way stated that it would get rid of the cancer. She had some of the cancerous moles removed and biopsied, not all of them. It was already said that there was some spreading that might have gone into the lymph nodes, but it would require even more testing.

    Being that she was exhausted mentally and physically from the medication and treatments already given, she sought a second opinion. In the beginning with the initial diagnosis she felt she didn't need to question it because we do have a very close history of skin cancer, losing our father to it. I guess she just finally got fed-up with feeling tired and sick that she wanted to make sure she had what she was diagnosed with. She said she just out-of-the-blue called up another oncologist and made an appointment. That second doctor found nothing--absolutely nothing.

    Given the amount of spreading and growth that she supposedly had, it's pretty much impossible that any kind of medication would just make it "poof" disappear. Skin Cancer is notorious for sticking around and spreading even with treatment.

    Adrenaline, that's the thing I'm having the most trouble with---his lack of file for her. Surely he didn't treat her without having one, so where did it go? It makes no sense. She has invoices and things like that from his office and her outpatient visits, so I told her to make sure she hangs onto EVERYTHING. It's just really disturbing. This whole thing is disturbing. The medications she was prescribed were both in pill form. I'm going to call her in a few and get the names so I can do some research. I'm concerned for her, very much. I'm not sure of the type of biopsies that were performed. I'll find that out as well, if she knows.

    Gynger, I'm also worried about the effects of the medication. I can't for the life of me understand why someone would prescribe a patient medication that they didn't need, for a disease they don't have. This whole thing just doesn't make sense. I just hope with everything I have that she's alright health-wise.

    I'll update you all in a few after I talk with her..

    Thank you all for your suggestions and thoughts--please keep them coming. I have no idea how to go about all this, and neither does she.
    Wow....... that makes the story even weirder. You can't diagnose metastatic cancer without doing a biopsy of lymph nodes. It's just common sense. If you want to see if cancer has spread, you have to take lymph nodes to look for metastasis. To take lymph nodes, you need to operate.

    What is even MORE weird is "Stage 2 or 3 metastatic malignant melanoma". ANY metastasis in melanoma automatically makes it a Stage 3 or 4 tumor.

    There are NO oral drugs that slow down the growth of melanoma. The only drug that is somewhat promising is an IV medication. Since malignant melanoma is dangerous, the treatment is surgery ASAP followed by radiation or chemotherapy.

    Yowza... what a mess. Talk to your sister..... get to the root of the story. Most of all, make sure she is healthy.

  15. #15
    Pamela
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    Default Re: Misdiagnosis?!?

    Whoa....this was Melanoma right?? Ok how can a doctor not know? Melanoma shows itself. It also has to be removed.

    Yes depending on the drug and what it DID do, not might have or could have...She needs to consult with an attorney. Cancer drugs are infamous for causing exhausting.

    Pamela

  16. #16
    Pamela
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    Default Re: Misdiagnosis?!?

    Fuck trying to edit or post.

    Rhi have her get ALL her medical records from day one, the start of seeing a doctor for the cancer he was treating her for. Even though i hear you it's not cancer, records are important. As she will get copies of them all.

    Also she needs a THIRD opinion. Yes i know but it happens.

    Then she should be clear with 2 opinions that can't find cancer. A diagnosis can be determined many ways for cancer. So i am not sure what all the doctor did to reach this result.

    Yes i read all the messages, and i agree...She needs an attorney, her records and get all her ducks in a row to see where the mess up happened from the start.

    I mean think, please. Was it a routine check up? Or was she feeling ill? Everything matters now.

    Good luck!! I still pray all goes very well for her! NO CANCER!!!!! YES!!!!

    Pamela

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    Default Re: Misdiagnosis?!?

    I just got off the phone with her. I don't know, I'm just getting some really strange vibes from the conversation. I asked her the name of the medications, and she said "Hang on" and it sounded like she was typing away on the computer looking it up. I asked her "Well, don't you have the pill bottle? Can't you read it off of there?" She said "I threw them out today after I talked to the other doctor." Even still, if she had been taking the medicine for 2 months, one would think that she would know the names of what she was taking. It's strange. Anyway, she kept typing away and then said "Let me call you back in a few minutes, ok?" So we hung up and she called back about 10 minutes later.

    She had one of the prescription's names, and the doctors' names. She told me that one of the medications was to stop spreading, and ease pain. She also told me that the first doctor diagnosed her as a "Stage 3". I brought up what you said, Adrenaline, that there would be signs of tumors and whatnot. She just shrugged it off and said the first doctor was an "Idiot".

    Here's the information she gave me:

    The medication is called Molybdenum. From what I looked up, this isn't an actual medicine, but a mineral? This is the function I found for it:

    FUNCTIONS
    Molybdenum plays an important role in 2 enzymatic reactions. They include aldehyde oxidase which is necessary for the oxidation of fats, and xanthine oxidase necessary for the movement of iron from liver reserves and converting nucleic acid to uric acid (waste product eliminated in the urine). Molybdenum is absorbed through the intestines and stored in the liver, bones, and kidneys. It is required for proper growth and development, the metabolism of fats and nucleic acids, metabolism of nitrogen, copper, and sulfur, and normal cellular functions. Cofactor in enzymatic systems involved in the metabolism of carbohydrates, fats, proteins, sulfur-containing amino acids, nucleic acids (DNA, RNA) and iron. Helps prevent cavities. Cancer-preventative (esophagus, stomach), helps detoxify or eliminate harmful sulfites from the body.


    It's described as a "Cancer Preventative". I found nothing on it that says it stops growth or whatever. Why would they try to prevent something if she already had it? This gets stranger and stranger, I swear.

    Also another bell that went off during our conversation is that she claimed she had been under the treatment of an ONCOLOGIST. Yet, tonight she said that he was a dermatologist.

    She'd also said that she has been taking the medicine for 2 months---tonight she said she was on it for 30 days.

    The original doctor is named:
    Taylor Stevens (he's either at or affiliated with Bacchus Hospital in CT)

    The dermatologist she saw for the second opinion:
    Jeffrey Shornick (Groton, CT)

    The new dermatologist did not remove any moles however, and told her that from the appearance of the ones she has, there is no reason to believe that she has cancer.

    Now, my question is (If she hasn't been dicking me around for the past 2 months of course), how can he tell the existence of Cancer if the moles had already been removed anyway? Shouldn't HE have removed some for testing to find that sort of thing out?

    She told me that she had signed the release with the new doctor and that's when he called the previous one, to get her records. Then they found that they claim she's never been a patient there.

    The way she's back-peddling is very worrysome to me. If I find out that this has been all one big lie, she's in for the ass-kicking of her life---no joke. She will also be written out of my life entirely. I'm just really starting to have my doubts about HER. She's made things up for attention in the past, but nothing too extreme. If she's made me worry and upset for no reason at all, she's dead to me. It would be an incredibly cruel "joke" or whatever the hell she intended it to be. Because she has a history of lying for attention, when she called me and told me about the diagnosis, I accused her of lying and told her to "shut the fuck up". She swore she was telling the truth.

    I'm going to dig deeper into this, and pry more information out of her.

    If she has been lying, I apologize to all of you who have sent your well-wishes and prayers. I'll fucking kick her ass, I swear it.

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    Default Re: Misdiagnosis?!?

    Quote Originally Posted by Rhiannon
    I just got off the phone with her. I don't know, I'm just getting some really strange vibes from the conversation. I asked her the name of the medications, and she said "Hang on" and it sounded like she was typing away on the computer looking it up. I asked her "Well, don't you have the pill bottle? Can't you read it off of there?" She said "I threw them out today after I talked to the other doctor." Even still, if she had been taking the medicine for 2 months, one would think that she would know the names of what she was taking. It's strange. Anyway, she kept typing away and then said "Let me call you back in a few minutes, ok?" So we hung up and she called back about 10 minutes later.

    She had one of the prescription's names, and the doctors' names. She told me that one of the medications was to stop spreading, and ease pain. She also told me that the first doctor diagnosed her as a "Stage 3". I brought up what you said, Adrenaline, that there would be signs of tumors and whatnot. She just shrugged it off and said the first doctor was an "Idiot".

    Here's the information she gave me:

    The medication is called Molybdenum. From what I looked up, this isn't an actual medicine, but a mineral? This is the function I found for it:



    It's described as a "Cancer Preventative". I found nothing on it that says it stops growth or whatever. Why would they try to prevent something if she already had it? This gets stranger and stranger, I swear.

    Also another bell that went off during our conversation is that she claimed she had been under the treatment of an ONCOLOGIST. Yet, tonight she said that he was a dermatologist.

    She'd also said that she has been taking the medicine for 2 months---tonight she said she was on it for 30 days.

    The original doctor is named:
    Taylor Stevens (he's either at or affiliated with Bacchus Hospital in CT)

    The dermatologist she saw for the second opinion:
    Jeffrey Shornick (Groton, CT)

    The new dermatologist did not remove any moles however, and told her that from the appearance of the ones she has, there is no reason to believe that she has cancer.

    Now, my question is (If she hasn't been dicking me around for the past 2 months of course), how can he tell the existence of Cancer if the moles had already been removed anyway? Shouldn't HE have removed some for testing to find that sort of thing out?

    She told me that she had signed the release with the new doctor and that's when he called the previous one, to get her records. Then they found that they claim she's never been a patient there.

    The way she's back-peddling is very worrysome to me. If I find out that this has been all one big lie, she's in for the ass-kicking of her life---no joke. She will also be written out of my life entirely. I'm just really starting to have my doubts about HER. She's made things up for attention in the past, but nothing too extreme. If she's made me worry and upset for no reason at all, she's dead to me. It would be an incredibly cruel "joke" or whatever the hell she intended it to be. Because she has a history of lying for attention, when she called me and told me about the diagnosis, I accused her of lying and told her to "shut the fuck up". She swore she was telling the truth.

    I'm going to dig deeper into this, and pry more information out of her.

    If she has been lying, I apologize to all of you who have sent your well-wishes and prayers. I'll fucking kick her ass, I swear it.
    Yikes..... I don't know of any doc that would tell a patient to take molybdenum unless the person had a RARE RARE RARE molybdenum deficiency, but that just doesn't really happen. It's definitely not anything a competent physician would tell a patient to take for skin cancer.

    The new doctor could tell whether there was skin cancer because:

    1) If suspicious moles were cut out for biopsy about 2 months ago, you could still see the scars from where moles were removed. When you cut out a mole, you have to put stitches in to close the wound.

    2) You could evaluate the other moles on the body visually to see if there are signs of cancer. We use the "A-B-C-D" method, evaluating each mole for Asymmetry, Borders, Color, and Diameter. Using medical judgement, it can be determined if any of the moles are suspicious. The doctor wouldn't cut out a mole for examination unless it was suspicious. There must not have been suspicious moles if none were biopsied.

    Wow...... weird

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    Default Re: Misdiagnosis?!?

    Thanks for that information, Hon.

    I'm just really really suspicious now, and it's tough because she's there and I'm here, so she's at an advantage and I can't see her face to tell if she's lying.

    When I had 3 moles removed a few years back, they used that "punch" thing on 2 of them, and cut the other one out. Luckily mine came back alright, even though they were suspicious at first. You just can't play around with that type of stuff when you have had an immediate family member die of the Melanoma.

    I'm determined to get to the bottom of it and find the truth, whatever that may be. Someone's full of shit here though.

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    Default Re: Misdiagnosis?!?

    Just ifn it were me.

    I would stand in front of my sister,eye to eye, and find out whats really going on.

    This may be a cry for help.

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    Default Re: Misdiagnosis?!?

    Quote Originally Posted by BigGreenMnM
    Just ifn it were me.

    I would stand in front of my sister,eye to eye, and find out whats really going on.

    This may be a cry for help.
    Hunny, it would be very hard for me to stand eye to eye with her.. She's in CT, and I'm in TN. But believe me, if she's lying about this whole thing.. I'll drive my own ass up there just to kick hers.

    There have been a whole lot of cries for help in her history. The most extreme was accusing one of my friends of rape years and years ago. After he was arrested and put through the hell of the investigation, her medical examination showed that she was still a virgin at the time of the whole "rape".

    I really thought that this was all behind her. She was institutionalized for years (at the IMH, in RI). She had multiple personalities (they had found about 9 of them), and skizophrenia (sp). She was finally released in 2002 after they found her to be "cured".

    Sounds like a Jerry Springer episode, doesn't it? And that's not even half of it.

    I really wish there was a way to verify that she's seen any of these doctors at all. But if I were to call any of them, they wouldn't give information out, right? With that whole "Privacy Act"? So the only way I can find out is if she finally comes clean.

    There have been a lot of things that have made me wonder about her even since her daughter was born, but I shrugged it off. They're kind of starting to make sense now. When Delia was born, she had reflux and had to go on Enfamil AR. Well, about a month after Olivia was born, Heidi said that Olivia had reflux too. Then, that reflux turned into a milk allergy. Coincidentally (or not so much), my brother's Son who was born a month before Olivia had a very critical milk allergy. These could just be coincidences, but I don't think they are.

    Maybe she didn't feel like she was gaining enough attention for those "lies", that she had to start an even bigger one? I really wish I knew what the fuck was going on. Nothing adds up.

    Why the hell am I the only sane one in my family? Everyone else is fucked up in some way. Keerist.

    I'm determined to find out what's going on. I'll keep you all posted.

  22. #22
    Featured Member tampadancer's Avatar
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    Default Re: Misdiagnosis?!?

    wow rhiannon...

    now that i know you sister suffers from MPD and schizophrenia, things are making a whole lot more sense now.

    I'm not trying to overstep my qualifications, I am not a psychiatrist (just a psych minor ), BUT, from what bits of information I've picked up....

    I think it's probably a fair assumption that the skin cancer was a delusion. i'm sure you know that schizophrenics offer suffer from paranoid delusions that can range anywhere from severe hypochondriasis to even delusional fantasies about characters and events.

    Is your sister on any medication for her illnesses? If not, thats critical. Maybe you should consider that you sister is not trying to intentionally hurt you, or that this is just her way of "getting attention," but that it could be a manifestation of her illnesses - thus, making this "cancer" very real to her (if they are, in fact, delusions)

    There is definitely something going on here, because the cancer story doesn't quite add up. But before you go up there and kick your sisters ass, or write her off, I think you should try to remember to be aware of the demons that MPD patients and schizophrenics can suffer from. (by demons, i don't mean it in the literal, spiritual sense)

    Please keep us updated. Does she live alone?
    <hugs> hang in there.

  23. #23
    God/dess Rhiannon's Avatar
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    Default Re: Misdiagnosis?!?

    Thanks Hon..

    Believe me.. Her psychological history is the only thing that's been stopping me from really confronting her about this, for fear that it will cause her to do something to herself--or her daughter. I'm more afraid for her daughter than anything, because she's so small.

    Luckily, she doesn't live alone. When she went through her "I'm Gay" phase (yes, it was a phase.), she met a girl whose family took her in after she was released from the IMH. She's been with them since her release, even though that girl has moved out of the house. She was kind of "adopted" by the family. So I'm grateful that she and the baby aren't alone, and there are people around to keep an eye on things.

    She was on medication up until she got pregnant. I don't think she's been on them since that point. She did claim to have PPD after Olivia's birth, however, and was treated with medication for that. She mentioned that they hadn't put her back on medication for those other problems because they found they did more harm than good, and would actually have the reverse effect on her.

    So with her past problems, you can see my dilemma about confronting her and actually finding out the truth. The only way I could possibly know is if she told me, I can't push things because it would probably send her into some horrible episode.

    In a way, I think I'm better off not knowing one way or the other.

    There's so much more to this, but I'll spare you all the details.

    I'm just sickened.

    Tampa, if you have any other information that would help, I'd appreciate it. Hey, Psych minor is nothing to sneeze at, and you still know quite a bit.

  24. #24
    Featured Member tampadancer's Avatar
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    Default Re: Misdiagnosis?!?

    I'm glad to hear that she is not on her own. Do you have any way of getting into contact with this family without going through your sister? I think it would be very helpful to talk with them and question them about any noticable personality and behavior changes.

    You said that "She mentioned that they hadn't put her back on medication for those other problems because they found they did more harm than good, and would actually have the reverse effect on her." .... <-- that is probably a claim on her part, and I can just about guarantee that doctors said nothing of the sort. The medications that schizophrenics are often put on include neuroleptics (antipsychotics), antiparkinsonian agents (drugs used to treat parkinsons disease), tranquilizers and mood stabilizers. I'm not sure which class(es) of drugs your sister was on, but ALL of them have potentially nasty side effects (http://www.mentalhealth.com/book/p42-sc3.html#Head_8)

    Many schizophrenics do not take medications as required, and not to scare you, but the results can be detrimental. This is a very difficult illness to manage without proper drugs... it is often degenerative without medication.

    I am urging you to talk to the family she is staying with and try to come up wiht a plan to get her back under a psychiatrist's care. ESPECIALLY since she is raising a child - she must be mentally and emotionally stable for that task alone.

    Again, good luck - if i can do anything to help, please feel free to PM me.

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