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Thread: screaming PAIN!

  1. #1
    Featured Member needtodance's Avatar
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    Default screaming PAIN!

    Just have to bitch here a minute... So I know i've mentioned the pain I have from my EDS a lot here....

    so yesterday, the boyfriend comes over to watch a movie, and spend the night. We're all settled down and cozy, should be relaxing and good sleep... and OWWWWWW OWWWWWWWWWWWWIEEEEEEEEEE every single joint in my body is SOOOOOOOOOOOO sore and painful that I just can't find ANY position that doesnt make me want to curl fetal in pain. SO i'm laying in bed, crying from it-got up, took a painkiller... but those have NEVER helped me to manage it-i'm pretty resistant... so no luck.... rub myself down with this cooling lotion for arthritic joints, that helps a LITTLE but i STILL am hoping that I'll fnd a position i can sleep in, and that the boyfriend won't wake up, since he has work early in teh morning and I'd feel guilty if he was tired and going in... Not to mention that I know he didn't sleep LAST night either, and fatigued people and power tools don't mix.

    Thankfully though, he didn't wake up, and somehow i MUST have found a position to sleep in around 3:30 AM, becuase i DID doze off before 4:45 when his alarm went off...

    And my body is STILL screaming bloody murder at me. And because its not just an isolated joint(wrists, knee, shoulder) I can't think of how to best ice it... freezing bath? maybe, but i don't want hypothermia....

    YUCK... why me?!?!

  2. #2
    AlexxaHex
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    Default Re: screaming PAIN!

    Sorry to hear it - what is EDS?

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    Featured Member needtodance's Avatar
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    Default Re: screaming PAIN!

    Ehlers Danlos syndrome.

    I had a post on it here a while back... Its a genetic collagen difficiency-means things dislocate easily because the collagen in skin/ligaments, etc. is flawed. Things dislocate easily, frequent outbreaks of tendonitis, sometimes(like in my case) a lot of chronic pain without a physically treatable cause, frequent severe bruising... Some other girls here have it, replied to my other thread... I'm sure they know more...

    THe guy who diagnosed me was a hand specialist and didn't tell me much about it, and none of my GP's have heard of it either. I try to explain it and its like WTF am I explaining it to the DR?!?!

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